One year ago today...

The world lost a wonderful mother, wife, sister, daughter, aunt and friend to that ugly disease known as cancer.

Your friends are thinking of you today, thinking of the last time we saw you, talked to you, hugged you! While we wish you were here, we know you're in glorious heaven, watching over us!!

Your faith was so strong, your grace during the most challenging of times was inmeasurable. I can only hope to be half the faithful servant you were, to be half the mother and wife you were. You left big shoes to fill!

Thinking of you also Tom, Kurtis, Ryan and Lisa. You must miss her so.

You can read all about Annette's journey on her blog and now her beautiful sister Lisa is keeping it going at "Grace Between the Lines"

Love you girlfriend! Until we meet again!

Does Santa Claus Bounce?

Our DADS group here in Omaha had a Christmas party for the kids last night. At BounceU, a place full of gigantic bouncers (no not the Patrick Swayze type) and guess who showed up?

Alex was so excited to see Santa. He also loves to bounce and he could hardly wait to get in there!!! Below is a picture of him going down the big slide.

Ho Ho Ho

That's what we wake up to now that the Christmas tree is up. Alex is sure Santa Claus is coming right now!! I keep telling him he's got a long wait, but he still runs to the fireplace to look up the chimney and see if Santa is there! I'm going to be bonkers by the 15th with this!!!

It is fun to see him so excited. He loves Santa. Santa is right up there with Elmo and Mikey Mouse! Now Santa has to figure out what to bring him!

And I'm exhausted! Decorating is exhausting! I told hubby tonight after lugging down 5 huge empty cartons.... "just think honey in 4 weeks we can lug these all back up!!!" He was not amused!

I hope you're enjoying the beginning of the holidays!

Happy Turkey Day!

What are you thankful for? I am thankful for:

my friends online and IRL
my family
that I have a job still (as of today)
My hubby has a job
Alex isn't sick today (yet)
Turkey and all the fixins
Our freedoms here in the USA
the beautiful weather we've been having

Enjoy your family and friends today!

Jewelry Giveaway

Stop by and see my friend Jeanette and her cutie patootie daughter Faith and also enter her Jewelry giveaway!

Dream A Little Dream of Me....

I had a dream last night about my Grandma and Grandpa. It still brings tears to my eyes, as it took place in their old apartment, where they last lived together, where I spent alot of my childhood and early adulthood with them. My dream starts off where my Grandpa had just died and we were going back to the apartment with my Grandma after the funeral. We were so worried how Grandma would do.

Strange thing is, Grandpa was sitting in his chair talking to us! I remember being so excited that he finally got to meet Alex, as Alex was standing by the arm of the chair chatting away (Grandpa died 8 yrs before Alex was born)! The apartment was just like I remember it too, complete with Grandpa wearing just his undershirt (with pants! LOL) like he always did when he was home for the day! He was smiling his smirky smile and was enjoying all of us being there. I think my other kids were there, along with my mom.

As for Grandma, she kept hiding from me. She wouldn't show her face. She was lying in bed with the covers pulled up over her head. I even asked to see her and she wouldn't come out. Not sure what to make of that?

I do believe that our loved ones can come visit us in our dreams. I'd like to think that they're together again and watching out for us. I know my Grandpa would have adored Alex, gotten a real kick out of him! My Grandma sure did.

I still miss them terribly. I hadn't missed my Grandpa in a long time...but it came back this morning when I woke up. I've been thinking about them both all day. Even if it was just a silly dream... I loved the few minutes I had with them!

Look at me, blubbering all over the place!!!

Dear Annette

It was a year ago that we finally got to meet in person. What a joy to finally get to hug you and your family!!! Ryan was every bit the doll he was in his pictures! You were too, yet you were so frail. I didn't want to acknowledge it though...I just wanted fun and happiness -no thoughts of disease.

Because of you, I got to meet so many of my long time on-line friends. So many, that if I start listing, I'd miss someone and hurt feelings. I don't want that. I don't want any other friends lost to me.

Because we lost you in December. To that ugly disease, cancer. It took a beautiful mother, wife, sister, daughter and friend way too soon. Way too soon for those of us left behind to even understand. Some days I still ask why.

I wanted to let you know I was thinking of you this weekend, wishing we were all back together on Jan's back deck.. laughing and sharing wine and stories!! But I know in our hearts, we are all together again with you...

Gone but not forgotten dear friend!

SAAAAA-WEEET!!!

Check it out!!!! Sarah Palin wrote me a personal note!!!

It says "Rhonda, your son rocks! Sarah Palin '08. Now Matt says she wrote it about Alex and I say she wrote it about Matt.... so guess it's for both of them!

Matt said she is a real personable lady, very cool. Matt even asked her about her lipstick and how she kept it on so long (one of his girlfriends wanted to know!) and she said she uses Carmax lip gloss, only 89 cents at Walmart!!! How cool is that? He said she is really someone awesome to meet. She's even thinner in person and just as gorgeous as she looks on TV! She asked about Alex and when Matt told her that he gets sick alot, she said she was very fortunate, that Trig hasn't been ill yet. Matt said this was the only note she actually personalized!!! (He also said I owe him one really nice Christmas present too!!)

I really admire her. I think she is one neat lady - regardless of politics and I think she'll put down syndrome on the map as well!!! Yes I have a girl crush!!! LOL

I'm proud of both my sons!!!! Off to buy a frame!!!

I believe......

I Believe...

That just because two people argue, it doesn't mean they don't love each other.
And just because they don't argue, it doesn't mean they do love each other.

I Believe ...
That we don't have to change friends if we understand that friends change.

I Believe...
That no matter how good a friend is, they're going to hurt you every once in a while, and you must forgive them for that.

I Believe...
That true friendship continues to grow, even over the longest distance.
Same goes for true love.


I Believe...
That you can do something in an instant that will give you heartache for life.

I Believe..
It's not about me taking a long time to become the person I want to be.
Question is, am I becoming the person God wants me to be?

I Believe...
That you should always leave loved ones with loving words.
It may be the last time you see them.

I Believe...
That you can keep going long after you think you can't.

I Believe...
That we are responsible for what we do,
no matter how we feel.

I Believe...
That either you control your attitude
or it controls you.

I Believe...
That heroes are the people who do what has to be done when it needs to be done, regardless of the consequences.

I Believe...
That money is a lousy way of keeping score.

I Believe...
That my best friend and I can do anything ~ or nothing ~ and have the best time.

I Believe...
That sometimes the people you expect to kick you when you're down will be the ones to help you get back up.

I Believe...
That sometimes when I'm angry, I have the right to be angry, but that doesn't give me the right to be cruel.

I Believe...
That maturity has more to do with what types of experiences you've had and what you've learned from them, and less to do
with how many birthdays you've celebrated.

I Believe...
That it isn't always enough to be forgiven by others; sometimes, you have to learn to forgive yourself..

I Believe...
That no matter how bad your heart is broken, the world doesn't stop for your grief.

I Believe...
That our background and circumstances may have influenced who we are,
but we are responsible for who we become.


I Believe...
That you shouldn't be so eager to find
out a secret. It could change your life forever.


I Believe...
Two people can look at the exact same
thing and see something totally different..

I Believe...
That your life can be changed in a matter of minutes by people who don't even know you.

I Believe...
That even when you think you have no more to give, when a friend cries out to you, you will find the strength to help.

I Believe...
That credentials on the wall do not make you a decent human being.

I Believe...
That the people you care about most in life are taken from you too soon.



'The happiest of people don't necessarily have the best of everything;
they just make the most of everything.

Proverbs 16:3

Blush....

My dear friend Amy nominated me for the Brilliante Weblog Award! Thanks so much Amy!!!

Now I want to follow the rules, however I think Amy already picked 6 people I would have selected... so I might fall short of the "7" but I'll try!!!

Karen - Chewymom

Jeanette, Faith's mommy

Cynthia

yup I fell short, cause Amy STOLE some of mine!!! LOL

Now its time to share! Here are the rules for this award: -

1. The winner can (and should, really) put the logo on his/her blog
2. The winner must link to the person from whom they received their award.
3. The winner must nominate at least 7 other blogs for an award.
4. The winner must place links to those blogs on their own blog.
5. The winner must leave a message on the blogs of the people they’ve nominated.

A Farewell to Summer

Goodbye Summer. I am hanging onto you with a white knuckled death grip, but I know I'll lose in the end. The days are getting shorter, the temps are dropping every so slightly, the flowers and annuals are beginning to look tired. Pumpkins and ghosts are in all the store fronts, the apple orchards are bursting at the seams.

I don't like you Winter.....I really don't. Maybe if you weren't so cruel, we could be friends. But just when I think I can tolerate you.... BAM... thirty below wind chills coming blowing in!!!!

So Summer... if you could just hang a few more days??? Give me that warm sunshine, melting ice cream and mosquitos (ok maybe not the mosquitos) for a little while longer......pul----LEAZZZZZZE???

Happiness is.....

A warm puppy!!! LOL

I need to figure out what happiness is... I sure know what it's not.....

Leave your Happiness is..... in the comments!!! I'd love to hear from you!

Love is.....

Love is patient, love is kind.

It does not envy, it does not boast, it is not proud.

It is not rude, it is not self-seeking, it is not easily angered, it keeps no record of wrongs.

Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.

1 Corinthians 13:4-7 New International Version Bible

A reminder for those of us who might need it right now!!!!

Sunflowers Galore!!

The sunflowers in Nebraska right now are gorgeous!!!! Yes to all the farmers, they are weeds... unless of course they're growing them for crops!!! There's nothing prettier than a field of sunflowers!

We had tons of rain at the right time this year to cause them to bloom so beautifully. I wish I had planted some myself, but I am enjoying them all around the corn fields and ditches!!!

Welcome to Nebraska in the Fall!!!!

OK Media Pundits, knock it off!

You're setting women back 40 yrs! Back to the days of June Cleaver and Harriet Nelson.

Whether you agree with the politics of Sarah Palin or not, we women should proud to have a woman running in this race!!! Stop the "she has children at home she shouldn't be running" or "where are her poor children while she's out campainging?" crap. Obama has kids at home, why isn't he home? Michelle is his wife and she's out campaigning too....why isn't she home? Palin has a good husband and dad by her side and obviously they made the decision together to run. No different than Obama and Michelle... so knock it off!!!! Judge her on her political history and current views... not whether she has a uterus and boobs!!!

If you don't stop, we'll be forced to march to Washington and burn our bras!!!! Trust me at my age and sagitude.... you don't want that!!!!! I'll go bra-less before I stand over the stove, making you all dinner, wearing my pumps and pearls!!!

Martha Sears had this to say (and I love it, thanks Karen!):

Thanks, ______, interesting. A couple of things: Baby Trig is now 5 ½ months old, not a newborn. Babies with Down syndrome tend to be raised by their families, not just the parents, when there are plenty of older children available.

My older children, even Matt who was 4 at the time of Stephen's birth, have learned a LOT from having Stephen to "help raise" and from having Stephen contribute them as they found out what unconditional love is. Matt will probably be choosing his life's work based on his experience being Stephen's older brother/playmate/part time guardian. Lauren got involved in this "raising", too, once she was old enough, 6 or 7, to realize that Stephen was really the younger of the two of them.

I'm thinking this 5th baby was a surprise for the Governor of Alaska, but when surprises come along you step up to the plate. She obviously has.

This Palin family is not perfect, never will be, but God help us if we all run around thinking we have to be perfect (even as AP parents, let's not put that burden on ourselves), let alone think that others have to fit one (perfect?) mold to be good-enough parents. This obviously is not the best timing for Mrs. Palin, but it is an awesome time for her to be McCain's running mate. She is up to the task of making this country a better, safer one for her own family and for her country - and maybe starting with all those preborn babies with Down syndrome whose mothers now may think twice before they end their babies' lives.

I'm sure there is a lot more that can and will be said on this subject, and I will be listening.

I have to admit...

I really liked Sarah Palin and her speech last night. I cried like a baby when she said "we" have her support and advocacy! Then I cried again when she brought Trig on stage! He's gorgeous (I'm a bit biased though, hehehe). I can't wait to hear more from her in the following days/weeks.

I think she's a smart, strong woman, loves her family and loves America. I love having a woman run in this campaign!

My son is at the convention, I can't wait til he gets home and get his insider view. The crowd looked pretty worked up last night and that was fun to watch as well!

Dear Mr. P Diddy- Puffy-Puff Daddy-Sean Combs

or whatever the hell your name is this week...

My heart bleeds for you. While I must pay high gas prices, I too must pay high medical bills for my child, on top of high insurance premiums. I have high grocery bills and a mortgage. I can't afford to fly my family anywhere now that airline tickets are so pricey and the chance of getting all your luggage is slim. Thank God for Target and Wal-mart so we have clothes to wear and shoes on our feet.

But you Mr Puff Daddy, have some serious concerns. How dare the big oil companies make you fly first class... the outrage. Ole Dubba is getting a strong letter from tonight. I cannot, I will NOT live in a country where a rapper must fly economy.

What is this world coming too? Oh the humanity...............

Maybe Jerry Lewis will have a telethon for you my friend.... Free P Diddy from the humiliating TSA body cavity searches. Free him from the $6 bag of peanuts and $10 hard as rocks pillows. Please world.... let Puffy Combs have his private jet.

Click here to fully understand the tirade above.

Well played John McCain!

well played!!!

Tropic Blunder - Take Two

Here is a list of some pertinent snail and email addresses, phone numbers and some fax numbers. Fire away!!!! I did borrow this from a post on Trisomy 21 board (thanks Emily) so give her a shout out for finding these!

Ok - here is what I have found. Robert Downey Jr. is managed by Creative Artists Agency, Ben Stiller is managed by Shepard & Associates and has a production company called Red Hour Films; Jack Black's agency is the Endeavor Agency and has a production company called Electric Dynamite Productions. Dream Works is owned by Viacom which also owns MTV and Nickelodeon and everyone else. This is Viacom's corporate statement:

CORPORATE RESPONSIBILITY
UNRIVALED ABILITY TO EDUCATE, ENGAGE AND EMPOWER

Viacom's social commitment leverages the power of its brand and the strength of its audience relationship to encourage action on a variety of pro-social issues that are important to our partners, employees, audience, shareholders and communities alike.

Click on Our Initiatives to learn more about our programs.

Viacom's Corporate Responsibility Council Mission Statement
The Viacom Corporate Responsibility Council seeks to provide company-wide guidance and support to pro-social programs governed by our brands. While nurturing each business unit's distinctive identity, the Council collaborates on Company-wide pro-social efforts, as well as, projects at the business unit level. The Council educates employees and audiences about key pro-social issues to inspire, enlighten and ignite action in both the public arena and within our own employee family.

Also here is a press release regarding Jack Black's project "Acceptable TV" for VH1:

http://www.vh1.com/press/press_releases/2006_release/acceptable_tv_01112007.jhtml

PASADENA, CA, January 11, 2007 - VH1, Jack Black and the team from Channel101.com have announced the first step in reforming the runaway user-generated content movement with the newly formed "Acceptable TV." The "Department" will be responsible for a website that will launch in February 2007 followed by a weekly TV series premiering on VH1 Friday, March 23 at 10 PM*.

Jack Black, Dan Harmon and Rob Schrab became pioneers of the do-it-yourself TV movement with Channel 101, a competitive forum for digital shorts founded in 2003, anticipating the YouTube revolution by a several years. Realizing they could not stand by while the tidal wave of user-generated content threatened to overwhelm the internet, "Acceptable TV" on the principle that, in Black's words, "some stuff is just not acceptable."

Fax Numbers:
Dream Works Studio 818-695-9944
Viacom Public Relations 212-258-6464
Ben Stiller and Representation c/o
Red Hour Films, Inc. ((310) 289-5988
Shephard & Associates (310) 858-3947
Jack Black and Representation c/o
Electric Dynamite Productions, Inc. (818) 733-2651
Endeavor Agency (310) 248-2020
Robert Downey Jr. and Representation c/o
Creative Artists Agency (424)288-2900 212.277.9099

Viacom's Companies:
MEDIA NETWORKS
BET NETWORKS
BET
BET J
MTV NETWORKS
ATOMFILMS
ADDICTINGGAMES
CMT
COMEDY CENTRAL
GAMETRAILERS
HARMONIX
LOGO
MTV
MTV2
MTVN INTERNATIONAL
MTVU
MTV TR3S
NEOPETS
NICKELODEON - NICK JR.
NICK AT NITE
NOGGIN
PARENTSCONNECT
QUIZILLA
RHAPSODY
SHOCKWAVE
SPIKE TV
THE N
TV LAND
VH1
VH1 CLASSIC
VH1 SOUL
VIRTUAL WORLDS
XFIRE
PARAMOUNT PICTURES CORP
PARAMOUNT PICTURES
DREAMWORKS STUDIOS
PARAMOUNT VANTAGE
MTV FILMS
NICKELODEON MOVIES
HOME ENTERTAINMENT

Creative Artists Agency(Robert Downey Jr)
Los Angeles
2000 Avenue of the Stars
Los Angeles, CA 90067
phone: 424.288.2000 fax: 424.288.2900

New York
162 5th Avenue, 6th Floor
New York, NY 10010
phone: 212.277.9000 fax: 212.277.9099


Richard Lovett, President
rlovett@caa.com

Rick Nicita, Co-Chairman
rnicita@caa.com

Lee Gabler, Co-Chairman
lgabler@caa.com

Kevin Huvane, EVP
khuvane@caa.com

Summer Photo Contest

This picture was taken at Give Kids the World in Orlando FL. Nothing says summer like a drippy ice cream cone!

You can enter the contest here, but it's over today so hurry!

Petition Against Tropic Thunder

I wanted to draw your attention to this important petition that I recently signed:

"Boycott Dreamworks and &Tropic Thunder"

Sign Petition


I really think this is an important cause, and I'd like to encourage you to add your signature, too. It's free and takes less than a minute of your time.

Thanks!!!

Apology

for the outburst yesterday. I was pretty upset. They are making Alex move schools, even with a letter from his pediatrician, outlining the detriment to him. I really hate public schools and I would find a private school today if there was one here in town, but there isn't. The only alternative is for severe behavior and he's not at that point, although with the change, who knows he might end up there.

I have to find peace with this, but so far I haven't. I'm taking Alex up to school today to visit and meet the teacher. I will try not to be angry, but it will be hard. When I feel this emotional, I let it all hang out!!!

I was angry at God and still am. Trying to make my way back to "this was meant to be" but I'm going kicking and screaming! LOL

Thanks to those of you who kept us in your thoughts and prayers yesterday!!!

Ask me if I believe God

Cause right now I don't.

The End.

The Power of Prayer

We could use it this morning. We meet with Alex's IEP team to determine if he stays at his old school or not. We really want him to stay! So if you wouldn't mind a quick prayer, we'd appreciate it!

While you're praying, could you also pray for a sweet little boy ( 3 yrs old), Ryan, who has suffered some strokes and is continunig to seize. He is also blessed with an extra chromosome and he and his family could use the comfort of prayer. He really is more important than Alex's school.

Thank you all! God works miracles!

Hazel I Ain't!

Cleaning house today. Urgh. Not fun on a sunny summer's day. I would fail the Flylady white glove test that's for sure.... I'm ashamed at the number of cobwebs and dust bunnies I found.

Steve's brother, Richard, is coming (from Chicago) to visit on Wednesday. He's allergic to everything under the sun including cats and dust bunnies. I'm really trying to eliminate the amount of each, so he can at least spend some time at our house (ok I'd like to eliminate the cats permanently, but I mean I'm trying to get rid of the hairballs). He is doing the allergy shots, which he says helps tremendously. During his previous visits, we spent alot of time at the hotel, because he couldn't be in the house for more than 10 minutes and he couldn't be outside much either. Very frustrating! Plus he hasn't seen our new house, so we'd like for him to be able to hang out for a bit.

Alex loves Uncle Dick. He can hardly wait! Uncle Dick is one of those uncles who likes to make funny noises, play dinosaur and also teach the kids a little something, even though they don't realize their learning! Alex likes to call him on the phone, so they can make funny noises together!!! I think Uncle Dick is the only one who truly gets Alex's gibberish....or he at least pretends too!

Well off my duff and back to the filth. Where does it all come from? I hope the Flylady police aren't in my neighborhood today or I might need bail......

The Scent of a Woman

I brought some of my Grandma's things home today. She liked to crochet and sew, so I have some of her handmade items. I had some of her towels and tea towels to wrap the breakables in. They smell like her and her house. It's only been a month, but I miss her so much and still am striving to actually believe she's gone.

I wasn't allowed to help go thru her apartment and clean things out. The kind of goodbye you need. I didn't get to smell her clothes and hold her things one last time, to see her home as she left it. My aunts made sure we weren't allowed in. I am angry at them for that. Now her apartment is gone, rented to someone else and so are most of her things. I wanted to say goodbye in her home, where her essence was. It's time to let go. But I'm still not ready.

I am grateful for the few things I know have of hers. I truly am. They aren't worth money, but they're worth their weight in gold in memories. But I'd trade them all right now for one more good day with her, one more chance to say I love you, to have Alex climb up on her chair and give her a kiss, the big wet sloppy ones she loved so much. I'd trade everything I own for that one more day, one more hour, one more minute. I don't want her things, I want her.

While we were carrying her things to the car, I looked down and found the most peculiar feather. It was black with white dots. Not whites lines, but actual polka dots. I showed it my dad and my PhD in wildlife brother and they had no idea what kind of bird would have shed it. I wanted it back... but my dad ran off with it. I think Grandma left it for me to find. At least I'd like to believe so. I hope I find more feathers.... I need them!

And Life Marches On....

I haven't had the energy to post in the last few days, I managed to get the stomach flu. Fun times, but hey it upped my weight loss efforts! LOL

Gearing up for school, which starts August 13. We have Alex's IEP for placement sometime the week before. I am torn between getting him acclimated to his new school and not. Everyone seems to believe that he'll remain at his old school, but I never want to "assume" at least not with him. So I guess we'll go to two open houses on that night..... unless a decision is made before then.

I scored tickets to Disney on Ice in September. Alex will love it! Should be good seats too... something to look forward to!

Thanks to those of you who are keeping up with us! Pretty boring stuff here...

What's your slogan???

My Slogan Should Be

Rhonda. Love Every Bite.

The Slogan Generator

Happy Birthday to me!

LOL! I know, how childish!!! But for some reason I feel childish this morning. I think it's been too soon since my Grandma passed. This will be the first birthday that I won't get a card from her. Makes me sad. So I guess I'm trying to boost myself up a bit....

I won't tell you how old I am, but I am way too old to be celebrating birthdays!! Let's just say that perimenopause is going to be my bestest friend rather soon!!!

Anyhow, I'm still thinking of you Grandma. I was the first grandchild and I'm sure today was a special for you and Grandpa. I was special to you (I ended up being the only granddaughter as well) and I felt it every day! Thank you for that!

Proud Momma

This is a picture of my oldest son, Matt. You probably recognize the other guy eh? Matt got to meet him last night while he was on the campaign trail.

Now don't turn this into a political tirade post. I'm not interested in whom you are voting for and why and how etc. I'm not even saying I'm for or against McCain either... I just think it's neat he got to meet someone who is so much in the news right now!

It's not the best picture of McCain and Matt looks sunburnt even though he wasn't!

He's also met Harrison Ford and Calista, Kate Hudson and her then hubby Chris and Warren Buffet and Chuck Hagel. Why son, why oh WHY??? no phone call while Indiana Jones was in your presence??? Isn't that the least you can do for your ole mom??

A little Update on the School Situation

We heard back from the director of SPED and she's kicking back our request to the IEP team. This really gives me hope that Alex can remain at his old school.

I'm trying not to get my hopes up, but Alex's favorite teachers (and mine) are on his IEP team, so there is some hope!

For those of you who missed my I'm mad as hell posts... I went on about this subject too... LOL! We were devastated by the news that they were moving Alex to a different school. He has worked so hard to get where he is and alot of has been because of his wonderful teacher and paras and the consistency they provide. We would be starting over if he had to move.

So if you don't mind a prayer or two... or crossing your fingers and toes, whichever works best for you, we would appreciate it!

Death

This has been a topic in our house for the past two weeks. I'm sure you all would like for me to move on, to get past it and get busy writing something interesting. Well I'm not quite there yet!

My Grandma's death has brought up the thoughts surrounding Alex's condition. For those of you who are fairly new, he has a primary immune deficiency. He was given a life expectancy of 10 yrs of age. Other doctors have said they wouldn't put a time limit on him, but that we will outlive him.

Harsh reality that is. I like to live in denial most days, but with my Grandma's passing, it's right up front, leaning on my already heavy heart. Some day, we will again be at the hospital, holding the hand of a dying person, with no hope of recovery, with tubes and machines and tons of doctors, asking God for one more day, knowing that each extra day means more suffering, going back and forth, up and down, watching the process of death. That person will be my child.

Hard to fathom that one. One too horrid to imagine, yet sometimes I do. How will it feel, how we will survive it? How do you make funeral arrangments for a child? How do you go on? Why go on? I let myself go there for a brief time and when it gets painful, I come to the land of denial. Denial is so much easier.

So in the process of letting my Grandma go... I too must process what may lay ahead for us.

I'm pretty sure I'm going to Hell.

Wouldn't someone who yells at a funeral director go to hell? Yes I did. Well let me at least explain myself before you shake your head and run away!!!

My oldest son and I were pallbearers for my Grandma's funeral. There were 8 of us, I was the only girl (I was the only granddaughter as well). When we got the funeral home, we were to park behind the hearse, so we would be one of the first at the cemetary. Well when we left, we ended up being the last car! The idiot directing traffic forgot about us. So we missed carrying the casket to the burial site etc.

So I chewed him a new ass. Right there, at the gravesite, in the rain, in front of the whole fam damily, standing in freshly dug mud!!! I don't care. He did a horrible job overall. My mom and aunts ordered 8 yellow roses to go in the casket, one for each Great-Grandchild. They forgot those. So he orders some real quick, brings them to the burial and waves them around, saying "I don't know what to do with these" Holy Cow! I finally grabbed 3 and placed them on the casket (they never went in the casket like they wanted). He was flippant and acted like he didn't care.

So I guess I'll be meeting him in hell........... but man it felt good to tear into him when I did. Not very tactful, but then that's me!!!

Of course I already have my handbasket reserved, after watching a bootleg copy of "The Passion of the Christ" and laughing hysterically at Monty Python's "Every Sperm is sacred" song...

You can all be ashamed of me now.....

Emotionally and Physically Drained.

I'm home from the funeral, after spending 3 days at my parent's house. Saying goodbye is so draining, entertaining family, ordering flowers, visitations and processions... all so tiring.

I saw some cousins I haven't seen in years which was nice. I think Grandma would have enjoyed having them come here while she was alive, but what can ya do?

You also see some not so good sides of people as well. I am unhappy with the way a few relatives behaved during this whole ordeal. But I guess time will heal those wounds too.

Now it's back to reality, a new reality of Grandma not being here in the physical world with us. I miss her so much already!

My Grandma passed away at 7:00pm tonight

On our anniversary too. I'm going to miss her so much. She taught me alot about life, which is what good grandma's do isn't it?

Thanks to those of you who were praying and sending thoughts our way.

I think Grandma is getting a chuckle out of going out with a bang!!! She's one up on Grandpa, who went in January and it was -20 when we buried him!

Death

Death and dying has been on mind since my Grandma fell ill. How do you explain death to a child like Alex? Abstracts ideas aren't exactly his strong suit. Sometimes even concrete ones escape him.

He got to see Great Grandma while she was really good. She was so excited to see him and give him a kiss. But to tell him this may be the last time you see her, much harder concept. Time... first time, last time..... Alex doesn't get "time."

I guess we'll just ease him into. He may look for her when we go down to my parent's house, probably sign Grandma is his cute little way and we'll have to tell him she's gone. I guess we'll tell him what we can and not make it complicated.

I know that after a few times, he just won't ask anymore. She won't be there and he'll be use to it. And Life goes on.......

I'm thinking...........

(you smelled smoke right?) that I should take a break from the online community boards for awhile.

I'm just not getting much out of it right now. It's becoming a chore. I feel drained by the people who need so much, yet when you ask for a simple prayer or good thoughts, no one is interested. Poor wittle me eh? Yup I think it's time to get a life, get some perspective, lose some weight, enjoy what's left of summer, enjoy my Grandma while I can.... blah blah blah. This isn't a pissy, I'm leaving, feel sorry for me, nobody luvs me type thing.... I just need to rejuvenate (and maybe I need a few margaritas). Life is kicking my butt and it's time to kick back.

I need to focus more on my child and family right now. Maybe when school starts back up I can reconnect.

It doesn't mean that I don't love the people I've made connections with or that I'm not keeping up with their blogs.... it just means I need to scale back on 'puter time.

At least these are my thoughts for now. Aren't you thrilled I shared them? OH wait, only two people read here so I'll probably lose them too! LOL I'm going to try to start blogging more about Alex and our adventures in T21! There's never a dull moment, but you'll probably argue with me on that point!

My Grandma....

is busy preparing for her next life, her crossing over if you will. I am sad. I've had her a long time, she's always been healthy and fit of mind. We took her everywhere with us! She was a part of our lives in

I will miss her, but I know it's time. I've fought the urge to beg God for more time, because I know the extra time would mean extra pain and suffering. That she doesn't deserve. But boy it hurts! I do want her here with us. She loves Alex so much, was always so accepting, so supportive. I guess we'll get that from above now.

So I hope Grandpa is waiting in the light for her, with his hand outstretched, whispering to her to come. Go Grandma... go with him!!! We'll see you soon enough!

I love you Grandma!!!

My Beautiful, Brave Boy!

Almost one week post op. He bears the scars. His little belly button is now an outtie for sure, one with a scab. It looks awful.

He has a two inch scar in his groin. The bandage came off today. It actually looks good (for an incision I guess).

He did his IG treatment today, with a modicum of crying and whinning. You'd think after having surgery, he'd be a bit more upset about having 3 needles inserted into his stomach. He wasn't happy by any means, but he wasn't hysterical either. My little trooper. No matter how many torture sessions he must endure (the infusions are once a week)... he endures them with grace. Everyone gets hugs and kisses, no matter the pain they inflicted a few minutes earlier. Well sometimes Mommy and Daddy have to bribe him back to sanity with treats...but he comes around!

I have to admit, I'm a wienie when it comes to medical procedures. I tremble at the dentist office and that's for cleanings! When I broke my toe last summer, I was off work a week! LOL I have tried to learn from my son, you know the one who's learning disabled, the one people would say "what could you possibly learn from him?" I've learned to accept the things I must do, no matter how painful, with grace and dignity. When I had to have a biopsy of my thyroid, I got 12 needles in my throat. I could see each needle as it passed my peripheral vision. I stayed calm by telling myself that Alex had endured countless blood draws, once a month IV's, 2 broken legs (one was let go over night before they set it) and numerous surgeries - so suck it up sister! And I did. The Doctor said he always worries about the quiet ones and kept asking me if I was ok (like I wanted to carry on a conversation while needles pierced my throat?). I just asked to him to try to keep the needles out of my eyesight. He didnt', but that's ok. I held it together.

My brave little boy, doesn't know what's coming, doesn't ask for it, but he gets more than his share of it. But he faces the hospital doors with his usual excitment (how many buttons can I push on the elevator?) and he's ready with a smile for everyone he meets. He sees Mommy and Daddy getting his treatment ready every Sunday, sure he fusses and whines, but he complies and we get wet, teary kisses after the needles are in and secure.

Sometimes ya just gotta suck it up sister!!!!!

What Kind of Weather are You???

I Am Lightning

Beautiful yet dangerous People will stop and watch you when you appear Even though you're capable of random violence You are best known for: your power Your dominant state: performing

What Type of Weather Are You?

What Freudian Stage are you in????

I Am in the Anal Stage of Development

According to Dr. Freud, you are stuck in the anal stage of development. If your parents didn't discipline you enough as a young child, you may be messy, reckless, and defiant. If your parents disciplined you too severely as a young child, you may be uptight, stingy, and passive aggressive. No matter where you fall, you are likely to have a few problems with authority.

What Freudian Stage Are You In?

We got through another surgery!!

Number 14 for my big guy. Hernia repair. He seems to be doing ok, although we have some swelling this morning. I have a call into the surgeon to make sure this is a normal part of the healing process.

The nurses all loved seeing him again and we loved seeing them too! We got to know them so well during our stint with IV IG. Now that we do it at home, we don't get see them anymore.... and I certainly don't want to wish any more surgeries on this kid, just to go visit!!

Thanks to those of you who kept Alex in your prayers on Monday. It was greatly appreciated.

What a week!

Seems like a lot can happen in a week. Tornados, floods, deaths....

Omaha has seen it share of storms this week. Two tornados were pretty damaging to property only, which is a relief. Then to follow, a tornado claims the lives of 3 Omaha Boy Scouts and one Iowan. So sudden, so young, so promising. There were flash floods in surrounding areas and of course we pray for those in Iowa right now.

Then nationally, the shocking death of Tim Russert. I lay no claim to being anywhere near interested in politics, but dang if I didn't stop to listen to Tim. I will miss him. He was strong, smart family guy... who just happened to have a gig on TV. I felt like I knew him... didn't you?

Prayers to everyone who has lost a loved one this week... Fathers who have lost sons and sons who have lost fathers.

Moving Forward

Although the popular opinion is to just move to the new school, just accept it, we are sending a letter to the Director of Special Education, requesting that Alex remain at his current school.

Didn't get much support from the Parent's group here in town, nor much from friends, we are at least going to ask. I feel we owe it to our son to at least try. Our family members were shocked and concerned, along with his daycare teachers. Of course all of us who will bear the brunt of change for Alex.... are concerned. We know what it took to get him this far and we know how much it will take once the work is undone.

While a 6 month adjustment period may not seem like a lot, to us it is. We don't know how long we'll have Alex here, and I want him happy and secure. I could give a rat's ass about middle school. If we get to middle school, I'll worry about it then.

That's it in a nutshell. I need to find other things to post about.

I am still mad, but more hurting than angry.

It's pretty obvious they don't want to give in and let Alex stay at his school.

I emailed his beloved teacher on the last day of school and asked her to make sure that he got to say goodbye to the people he loved at school. She never emailed me back. That really hurt. I thought she really cared about Alex, liked us a people, just not parents. We talked about our kids together, we laughed together and held onto hope together. I really feel abandoned by her right now. People tell me maybe she's hurting too, I dunno. I just know that I am and my child will when he has to show up at a completely new school next fall.

How do you tell a child why... a child who can't always comprehend the big picture? When he can't verbalize "where is my favorite teacher, where are my friends, where is my favorite custodian who gives me a hug everyday?" All he can do is worry inside and act out. And not act out in the most appropriate way. What do I say to him, when he starts peeing in his pants, biting his classmates and refuses to work? That sorry honey, the big ole administrators felt it's a duty to teach you all about change? Don't they understand they are really teaching to not trust, to not love people, because they leave? Because they make you start all over again? Nothing is familiar, nothing is the same.... and then they blame you because you misbehave? Because you're frightened and just want the "old" routine back?

I use to brag about his school, about his teacher. I was smug. We never had the problems other have had...Alex has never had to worry about being voted out of his class. We trusted and we felt safe. Until now..... today I eat crow.

I can't say I've ever hated much.... but I really hate these people right now. My child can't have the security of a long life.... the security of being well for a long period of time. He use to have the security of a loving school....now that's gone too.

The school says they're doing us a favor. Millard Public Schools.... you can take your favors and SHOVE THEM!!!

I'm mad as Hell....

and I'm not going to take it anymore!!!

Did I tell you I'm mad???? Millard Public Schools suck. They suck rocks.... right now I hate them, hate them, hate them.

Why do they always have to mess with the most helpless of children? Because they are bullies and these kids are easy targets.

I may not win my battle.... but I vow to be the biggest pain in their arses and make them as stressed and emotionally upset and unsettled as I am right now. I want them to lose sleep at night, I want their stomachs to hurt and their hearts ache just like mine do right now. Momma Bear is alive and kicking!

There was a time.....

when I thought I'd never hear Alex say "Mom." He could say daddy (deeee), kitty (keeeee) and puppy (peeeeee - of course he wouldn't say peeeeee when it came time for potty training, but I digress), but not even meeee or eeee for mommy. I'd coaxed and coaxed and would have taken Hey You or Yo...anything, but nope. I was just a grunt or a growl or a general point of the finger in my direction (hey at least he could identify me when asked!). I learned to accept it. Tis better to be a grunt or growl than nothing at all eh?

OK, I accepted it at times. Daddy was deeee and even sometimes Steven if I was yelling at him (which is alot) and this little voice in his broken english would yell steeeee at him. Why was mommy so hard???

He was about 6 when meeeee or eee finally came out of his mouth (you see the pattern with eeeee items). I was so excited! Finally I had a name, a purpose! Well the purpose wasn't always one of grandeur... usually it meant he spilled something, broke something, was hungry or pooped his pants... but hey I had a name!

Now it's Mom. And I hear it constantly... Mom..... Mom... MOOOOOMMMMMMM! Again, it usually means Mom... I screwed up (insert spilled drink, broken item or pooped pants) but sometimes he just yells it out so he knows where I am. It's re-assurance that he's not alone.... Mom..... Mom.... MOOOOOMMMMM...... and once I yell "What" back at him, I hear a big sigh of relief... like all is right in the world.....

Happy Mother's Day to all of you wonderful moms!!! If you're not the momma... then go hug yours!!!!

My Poor Guy

Alex has been through so much medical testing lately, it's bordering on insane. He's been potty trained for a good long time now and suddenly in the last month or so, he's been wetting his pants and have the occasional blow out (yes of the worst kind!).

We at first thought it was a behavioral issue, trying to get attention. But it's gone on and on. I talked with his teacher (she's had Alex for 3 yrs now so she knows him well) and she doesn't even think it's a behavior issue or an attention seeking behavior. Soooo poor Alex, has peed in the cup, had sticky paddles stuck to his butt (don't ask), blood work, an ultra sound and finally this week, an MRI of his spine and bladder. All normal.

So now we're down to behavior or his ADHD meds. UGH.

He is seeing an urologist on May 15th and that's our final round in the medical field. Next is a developmental ped and/or psychiatrist.

I still feel like we're missing something medical. Or I'm in extreme denial that this is behaviorial. Ok... I am in denial about that. Behavior is oh so hard to fix and this kid is stubborn!!!! I am so disappointed that we've had to go back to carrying a diaper bag and putting him in pullups at night. He's been out of pullups for so long..... I'm just frustrated that he has regressed to a point where we're afraid to take him public for fear of a huge blowout diaper in the middle of JC Penny's!!!

Boy some days of having a child who is practically non verbal and stubborn can be rough. These are days when I need to count blessings instead of whine!!!

World Down Syndrome Day!

Much love goes out to all the friends I've made since Down Syndrome came into my life.

For those of you who believe that down syndrome is a burden and takes away from life, we are here to tell you of the blessings, the joys and the love that down syndrome has brought to us! Visit my friends on the right and visit their friends! Proof positive!!!

Happy Down Syndrome Day to my bestest friends and their beautiful children!!!

In Acceptance of Snot

Sometimes I find myself very witty. I was posting on my dear friend's (Christine) blog about her son and his sinus infections. I'm such a buttinsky!! I had a revelation while typing my words of wisdom.

We've accepted snot. We fought it and fought it and at last, we have raised the white flag. Snot is no longer our enemy.

Peace my friend snot... hail all boogers of green, yellow and dried blood red! We applaud the rare yet ever so entertaining, bubble O'snot, should one be so lucky as to catch a glimpse! You store our bits and pieces of M&M's, mini legos and the occasional spaghetti noodle (which dances in and out like a king cobra to a snake charmer) without nary a complaint. You hide under desks and tables, drying with age. And what a prankster you can be, as you dangle out of the nose of some poor soul who has no clue you're even there! We have snot rags, snot face (you've all seen Drop Dead Fred right?) and snot fights. The streets are slicker than snot tonight thanks to the ice storm.

So after 7 1/2 years of all out snot wars... we've come to acceptance. It's a part of Alex's life and always be. I'm thinking Kleenex loves us! And whatever company makes rocephin... Alex should be their poster child!

Everyone raise your box Kleenex in honor of SNOT!!!

Someday they're going to find a good use for it and we're gonna be rich!!!!

My Grams

I have to post about my Grams, who is going to be 90 on the 25th. We're having a family luncheon and then open house for her. She's sooo not into having parties, so she doesn't know about it yet. We decided it was best left a secret until we get closer.

She's doing so well and is relatively healthy. I am so fortunate to still have her around and have her of sound mind and body. She loves Alex and plays ball with him. Now I'm not saying she doesn't love her other grandchildren and great-grandchildren, she just has a special place in her heart for Alex. I'm the only grand-daughter out of 8 grandchildren, so I was spoiled as a child. Her and grandpa took good care of me through the years. We were all so sad when we lost Grandpa 15 years ago. I think he would get a kick out of Alex today... he was ornery much in the same way! LOL

Happy Birthday Grams! Here's to many more!

Alex was tagged by his best bud....

Brady for the love/hate meme.

Alex loves....

Grandma, Great Grandma and Grandpa
Matt
Jenny
Daddy
Curious George
Ice cream cones!
puppies of any size
horses
Disney World
His ENT Ann and his ped Mary
bubbles
balls
balloons
cake with tons of frosting
candy
swinging
running
jumping at Bounce U
swimming
playing in the rain and in the snow

Alex hates

haircuts
needles
the dentist (sorry Dr Cade - but I hate them too!)
medicine
baths
getting ready for school
going to bed
getting out of bed for school


I'll tag Nash and Mikey (if mommy even reads this! LOL)

~*~*~ HAPPY 8th BIRTHDAY SWEET BOY ~*~*~

Where does time go? I cannot believe it's been 8 years since my little guy came into this world.

I don't think I've ever posted his birth story. I wonder if I can remember it all? This old momma has aged since then....

His due date was between Jan 23 and the 30th. The perinatalogist wasn't going to let me go past that date, as he felt he was a big baby already. I stopped working on Friday and was hoping for a week at home before Alex arrived. We hadn't fully decided on a name yet either. We knew we were having a boy.

I had lots and lots of ultra-sounds. We probably should have had a clue at that point that maybe something was up. I also had tons of amniotic fluid, another sign, but I didn't know that then.

I woke up the morning of the 26th, feeling crampy. I asked Steve to stay home from work, but he just had to go in (personally I think he was terrified of the upcoming event!). About 9:00am I told him to come back home, this was it. He rushed home and we packed up and headed for the hospital. It was probably a bit too early, but I hadn't had a baby in 14 years, I thought we should go. We got all settled and got hooked up to the monitor etc. I was going to see how things went, holding off on the epidural at first, but I knew I would have no qualms about asking for one. I think it was about 4:00 when I finally asked. Once it was in, I said "I love anesthesiologists!!!" I think that made his day. Of course this slowed things down. I think they broke my water after that. All three of my babies had to have the water broken at the hospital... just a bit of trivia for ya.....

I probably started pushing about 7:15 or so. Took awhile to get dilated to 10. Alex was born at 7:51pm. The OB first words were "Holy cow somebody weigh this kid!" He came in at 10 lb 3 oz. He looked perfect! Once we held him and oohed and aahhhed... they took him off to clean him up etc. We were happily getting stitched up and chatting. Steve went to check on Alex. He came back a few minutes later with a funny look on his face. I knew something was wrong. He said that Alex had aspirated on the sugar water and they were working on him. I asked if he was ok and he said he didn't know. It took them awhile to come in and tell us what happened. We now know that the NICU nurse, Marilyn, had picked up on the extra chromosome and they took him straight to the NICU. We still were clueless. Steve went home and I went to my room.

I was treated poorly by the nurses. They told me I could only call for help 2 times and them wheeling me to my room was 1! I was kind of surprised, but was so tired and sore I didn't question it. I think they all knew and I didn't want me asking them questions they didn't want to answer.

The next morning, the neonatalogist came in and broke the news abruptly and left the room. We waited until Friday to get the FISH test results and it confirmed Down Syndrome. I went home Friday without my baby! He was in the NICU and outweighed any 3 other babies in there, put together! I think that was more heartbreaking, leaving him behind, more than the T21.

After 15 days in the NICU and some harrowing medical situations, he came home. And the rest is history.

Considering most of our doctors thought he wouldn't survive his first year, here we are at #8!!!

I love you little boy!!! You can be trying and ornery and stubborn, yet sweet, cute and cuddly. You've brought so much joy to our family... I can't imagine life without you!!!

Happy Birthday!!!

I've been tagged!!

By my good friend Nic. In turn I am tagging Christine and Monica. The meme is "What I love and What I Don't Love (or What I Hate).

I love my family
I love my friends
I love summer
I love asiago cheese bagels with cream cheese
I love napping in the afternoon
I love snuggling with Alex
I love to shop
I love to travel
I love to have a cup of coffee and read the paper in the morning
I love the beach
I love the mountains
I love to fish
I love sweets
I love Coke (the kind in the can!)

I HATE cancer
I hate hate
I hate raisins in anything
I hate coconut in anything except suntan lotion
I don't love people who litter
I hate people who hurt children (born and unborn)
I hate war
I hate going to work everyday (where's that lottery ticket?)
I hate all the campaign ads right now

I know there's more...... Thanks Nic for getting me back on my blog!!!

What's the recipe for your personality??

The Recipe For Rhonda

3 parts Desire 2 parts Fascination 1 part Impishness Splash of Imagination Finish off with whipped cream

What's the Recipe for Your Personality?

What a year we've had!!!

It's been a big year for us. First we got to meet Mickey Mouse and all his friends at Disney World. We got to meet Curious George at the zoo (we stood in line to meet George for a lot longer than we had to wait for Mickey!!) and Alex got his picture on Times Square for the New York Buddy Walk.

My friend Laura Q was kind enough to snap a shot of it as it whizzed past on the Jumbo Tron. I love it, as I was so disappointed to not make the big trip to the big city!!! So here it is, in all it's glory!!!

Guess what I got for Christmas????

If you guessed a guitar and some M&M's (note the chocolate mustache and beard) you are correct.

Merry Christmas from my little Guitar Hero!!!

For my dear friend Annette

heaven will receive a beautiful angel and we on earth are losing a beautiful friend! I know that you are surrounded by beauty and light.

Until we meet again........

Another Fun Christmas Poll

You know I'm gonna tag you Christine!!!!

1. Wrapping paper or gift bags? Both

2. Real tree or Artificial? I prefer real, but we have an artificial

3. When do you put up the tree? Usually by 2nd week of Dec

4. When do you take the tree down? As soon after the 25th as I can

5. Do you like egg nog? ohhh yeah

6. Favorite gift received as a child? Easy Bake Oven

7. Do you have a nativity scene? Yes

8. Hardest person to buy for? Steve

9. Easiest person to buy for? Alex

10. Mail or email Christmas cards? snail mail

11. Worst Christmas gift you ever received? Hmmm I don't recall

12. Favorite Christmas Movie? A Christmas Story

13. When do you start shopping? Way too late

14. Have you ever recycled a Christmas present? No

15. Favorite thing to eat at Christmas? Ham and Christmas cookies, no not together!

16. Clear lights or colored on the tree? clear

17. Favorite Christmas song? Hark the Herald Angels Sing

18. Travel at Christmas or stay home? Home

19. Can you name all of Santa's reindeer? Yes

20. Angel on the tree top or a star? Angel Bear

21. Open the presents Christmas Eve or morning? Morning

22. Most annoying thing about this time of year? The messy slushy snow while shopping

23. Favorite ornament theme or color? Country looking

24. Favorite for Christmas dinner? Ham

25. What do you want for Christmas this year? Leather Jacket

OK.... tag you're it!!! Christine, Jan, Tara Marie

Tagged by my Favorite Utah gal!

You can go visit her here.

What is your favorite thing about the holiday season?
Seeing all the decorations go up, whether it's at the stores or work or home.

What is your favorite holiday memory?
Santa Claus would always bring us these huge red apples! Yes we had apples alot and we even had apple trees, but those big shiny red apples were my favs!

What is the best gift you ever gave?
I'll have to think on that one!

What is the best gift you've ever received?
An Easy Bake Oven!!! LOL no one of the originals... the ones that could burn your house down.. no safety codes back then! I loved it.

What is your secret holiday wish this year?
Now if I tell, it won't be a secret

I really like Alex's new doctor

WOW! Talk about putting a new perspective on things! I think we needed to change immunologist and I think we waited too long. Our old Doc just gave up on Alex. He wasn't looking to find any new treatments or options etc. This new guy is so enthusiastic about finding something to help Alex, it's amazing how much my attitude has changed.

We're upping Alex's IV dose and doing it every 3 weeks instead of 4. After December, we'll more than likely go to the subcutaneous IG rather than the IV. It is once a week, but less traumatic and less time off of work. We can actually do it ourselves at home if we want.

This is the first time in over a year that I don't feel like my child will be dead in two years. I know he can't cure Alex, but it sure is dang nice to have someone at least fight!

Thank God for the doctors who still give a damn!!!

UGH! Another short bus reference!

I love Sell This House on A & E. I've watched it for the past couple of years. But today I was blown away, when during the episode, the homeowner said "yeah it turned out short bus yellow" WTF??? I couldn't believe that they left the comment in. So off I head to my computer to shoot an email to A & E. So I searched for the episode and what did I find??? Holy Cow! They actually quoted the lady on their website!!! Like she offered up some kind of profound wisdom!!!

You can read the offensive episode description here. If you would like to email A & E, you'll find them here feedback@aetv.com. I also managed to find Tanya Memme's email addy, so I thought what the hell, I'll fire one off to her too. If you're gonna throw your big ole ta ta's around like someone important, you better be ready to take the heat! TanyaMemme@gmail.com

I also emailed the ARC and NDSS. I tried that the last time I heard a nasty remark made in a TV show, but I got little response. But hey I try!

Shame on you Sell This House. Shame on you A & E TV!!! May your show get cancelled and they replace you with Danny Bonaduce!!! Now that's karma baby!!!

Halloween Tag

From Christine....

What was your favorite Halloween costume as a child?

My mom actually had a poodle skirt from her high school days, so my friends and I dressed up as 50's girls.


What was your least favorite Halloween costume as a child?

We use to have to wear those store boughten costumes, the one with the plastic masks and a little slit in the mouth so you could breathe. I don't remember which one I picked, but I remember it being cold out and yet sweating behind the mask... yuck!


What was your favorite Halloween candy as a kid? Is it still your favorite?

Any chocolate bars. Next came Smarties and bubble gum. My brothers and I use to swap for the candy we liked. Sometimes we got a huge full sized candy bar or money!!! I still love Snickers and Baby Ruths!

How old were you when you stopped trick-or-treating? Do you miss it?

The last time was the poodle skirt and I think we were 13. We had a blast.

What's the scariest movie you've ever seen?

Hmmmm..... The Omen, I know there's others, but I can't think of them... I'm not into the Halloween ones etc. I don't much care for the slasher movies either.

And - have you ever dressed up in "matching" halloween costumes with your date? What were they????

Nope.

Now who to tag.... hmmmmm. Monica (cause she'll never read this and do it!), Jan and Beth. I don't have 5 friends! LOL

I'm exhausted.

We had a glorious time in Indy!!! It was wonderful to meet all the people I've been chatting with for over 6 yrs now! The children were beautiful and fun and active! Jan and Jeff were wonderful hosts, I don't know how they did it all!

Smooches to all of you... oh you know who you are!!!!

Where do we meet up next year???

What should you be for Halloween?

Your Halloween Costume Should Be

Elvis

What Should You Be For Halloween?

A cute girl

Went to lunch with my oldest son today, we both we're bumming around. Went to Jason's Deli. I love that place for lunch. It's as close to a New York deli as you're gonna get in Nebraska! LOL

Anywho, who should appear in the restaurant but a cute little girl, probably about 8 yrs old, gorgeous white blonde hair and a stunning smile. Yup she also had that extra chromosome.

I kept watching her interact with her older sister and someone who had a young baby with them. I tried not to stare... but I couldn't help it. It's irresistible... really it is. You just want to see how other families interact, how the child is doing etc. She was kind of a monkey... hehehe... just like Alex!!! They would have been an ornery pair together!

I tried to give the mom the "I get it" smile... I hope she understood. I wasn't one of those rude, irritating people.... or maybe I was after all??? Hmmmm....

Missed it by this much..........

I intended to blog yesterday, I really did.... but ya know, Sunday night TV is my night! ABC rocks it on Sunday night!!!

Anywho, I wanted to post about what a wonderful afternoon we had, just the three of us. We had shopping to do and Mommy was on a mission for a rug. It took us 3 stores and driving all over Omaha to find it. I'm not really fond of it once I got it home, but it was such a hassle, I'll keep it for now. But I digress from the fun. We stopped at DQ and got hot fudge sundaes!!! Now if you don't know by now that my kid likes ice cream, where have you been? Off reading other blogs and not mine! LOL

My point being is that it was soooo "normal" stopping for ice cream on a warm Sunday afternoon, enjoying the weather and the company. Many people think because you have a child who doesn't fit the mold of "normal" nothing in your life is normal. Couldn't be farther from the truth!!!! While he was licking the bowl and getting fudge all over his face, I realized we are your typical family, complete with a messy, fudge covered kid!!!!

So to the family staring at us.... we are soooo more like you than different from you.... next time enjoy your treats and family time and stop staring!!!!

Tag - I'm it.

Thanks to Kei she tagged me with this little tidbit for our 31 for 21 (thank goodness as I was not coming up with a good idea today!)

What I have learned from Alex:

Prayer
Self-sacrifice
Unconditional Love
Courage
Sleep Deprivation (you asked)

What I wish for Alex's future:

Happiness
Courage
Love
Adventure
Dreams


Your turn!!!

Friends.

On my continuing quest to meet the 31 for 21 ( minus 2 for me so far), I am thinking about my online friends.

I found them on Parent's Place when Alex was about 1. We had struggled to keep this kid alive his first year, I didn't spend alot of time on the computer. I had no idea these communities existed even! I did the usual searches when Alex was born, and eventually I came upon Maddy's (Amy O's sweet daughter) story. She had just passed away. That drew me into the world of online communities. I wanted to know more about her and the wonderful ladies who were posting to her. I didn't know that others felt the way I did....I didn't know many people IRL, who had children with T21.

And I'm glad it did. I have met some of the best people in the world and a few of the really bad ones too online!!! A sub-set of the bestest ones I am going to meet in person next week and I cannot wait! We know so much about each other, our lives, our hopes, our heartaches and to think we've never met in person, yet we have built such bonds, seems impossible. I would welcome any of them into my home and I'm pretty sure I'd be welcome in theirs. I cannot wait to hug them and hug their children, to look into their eyes, to really know them. Although the farting dogs can stay home!!! hehehe

One little chromosome.... packs a wallop huh?

Just like other kids.

Alex didn't want to get out of bed this morning. I talked and chajoled and tickled, but he just buried his head under the pillow, saying no no. Just like other kids.

He complained while getting clothes and complained about combing the hair and brushing the teeth. Just like other kids.

And shoes??? The ultimate in concession..........he had to go to school, just like other kids.

But mommy got a big ole wet sloppy kiss before he left with daddy!!! Mommy was happy... just like other mommies!!!

It's not about the differences.............

I know where stubborn is!

I don't need a PhD in genetics. I don't need to spend years and years in a lab, experimenting on rats. I know exactly where the stubborn gene is!!! (I anxiously await my Nobel Prize in Medicine!).

It resides on the 21st chromosome. Yes I am positive about this. And guess what? My son just so happens to have an extra 21st chromosome........ so you can draw the conclusion he is extra stubborn!

If you want proof, please stop by my house at about 6:45am and try to get him up, dressed for school, give his breathing treatment, comb his hair, brush his teeth and give him 2 other meds. I don't need a fancy dissertation.... I don't need a hypothesis.... I live it each and every day. Come on over you'll see I'm right!

PS. I also believe that the Y chromosome carries some pigheadedness.... I have two sons and a hubby..... the one son with the extra 21st chromosome..... God give me strength.

Get it Down, 31 for 21.

I'll admit up front... I won't hit 31... hey I'm starting on Oct 3rd for pete's sake! LOL But I am gonna try. Click the button below to read more!!!!

I shamelessly stole this from Kei

but I really really liked it... so here goes...

Matt was born on a Monday

Monday's child is fair of face.
You are good-looking, especially when you smile!
You are beautiful inside and out.


Jenny was born on a Tuesday

Tuesday's child is full of grace.
You have many talents, and are fun to be around.
You dance through life!

Alex was born on a Wednesday

Wednesday's child is full of woe.
You are a serious person, and try to change things that seem unfair.
You make the world a better place!

Steve was born on a Monday

Monday's child is fair of face.
You are good-looking, especially when you smile!
You are beautiful inside and out.

And I was born on a Sunday

But the child born on the Sabbath day,
Is fair and wise and good and gay.
You are sunny, fun, and loving.
You bring much joy to other people!


I think they fit! If you'd like to find out your birth "day" click here

And you can find my good friend Kei here

Which Rocker Chick are you?

I am Avril Lavigne!

A bit hardcore on the outside... But sweet and sensitive on the inside. "It's a damn cold night Trying to figure out this life"

Who's Your Inner Rock Chick?

Time is flying by!!

Holy cow. One minute it's 105 out and now it's 75 and a cool breeze!!! Where the heck did summer go? I love fall, the smells and colors, but I sure do hate winter! I am not a snow bunny. I am a fun in the sun bunny! (Ok I'm a big ole lumpy bunny who eats too much ice cream and candy!)

Alex is recovering from his pneumonia. We were fortunate to catch it early and not spend any time in the hospital. He still needs his breathing treatments, but we are done with the antibiotic. He loves school and is doing well. They've already had one field trip and have another next week. Must be nice!

I saw a precious little blond haired boy today at the mall. Complete with that extra chromosome! Big brother was pushing him around in the stroller and he was squealing! LOL I recognized his mom, but she was busy trying out new makeup and I didn't want to interrupt! I know what it's like trying to pick out makeup when you have all the kids with you!!! It was fun to see him enjoying the fast ride!