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Rhonda. Love Every Bite.

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Happy Birthday to me!

LOL! I know, how childish!!! But for some reason I feel childish this morning. I think it's been too soon since my Grandma passed. This will be the first birthday that I won't get a card from her. Makes me sad. So I guess I'm trying to boost myself up a bit....

I won't tell you how old I am, but I am way too old to be celebrating birthdays!! Let's just say that perimenopause is going to be my bestest friend rather soon!!!

Anyhow, I'm still thinking of you Grandma. I was the first grandchild and I'm sure today was a special for you and Grandpa. I was special to you (I ended up being the only granddaughter as well) and I felt it every day! Thank you for that!

Proud Momma

This is a picture of my oldest son, Matt. You probably recognize the other guy eh? Matt got to meet him last night while he was on the campaign trail.

Now don't turn this into a political tirade post. I'm not interested in whom you are voting for and why and how etc. I'm not even saying I'm for or against McCain either... I just think it's neat he got to meet someone who is so much in the news right now!

It's not the best picture of McCain and Matt looks sunburnt even though he wasn't!

He's also met Harrison Ford and Calista, Kate Hudson and her then hubby Chris and Warren Buffet and Chuck Hagel. Why son, why oh WHY??? no phone call while Indiana Jones was in your presence??? Isn't that the least you can do for your ole mom??

A little Update on the School Situation

We heard back from the director of SPED and she's kicking back our request to the IEP team. This really gives me hope that Alex can remain at his old school.

I'm trying not to get my hopes up, but Alex's favorite teachers (and mine) are on his IEP team, so there is some hope!

For those of you who missed my I'm mad as hell posts... I went on about this subject too... LOL! We were devastated by the news that they were moving Alex to a different school. He has worked so hard to get where he is and alot of has been because of his wonderful teacher and paras and the consistency they provide. We would be starting over if he had to move.

So if you don't mind a prayer or two... or crossing your fingers and toes, whichever works best for you, we would appreciate it!

Death

This has been a topic in our house for the past two weeks. I'm sure you all would like for me to move on, to get past it and get busy writing something interesting. Well I'm not quite there yet!

My Grandma's death has brought up the thoughts surrounding Alex's condition. For those of you who are fairly new, he has a primary immune deficiency. He was given a life expectancy of 10 yrs of age. Other doctors have said they wouldn't put a time limit on him, but that we will outlive him.

Harsh reality that is. I like to live in denial most days, but with my Grandma's passing, it's right up front, leaning on my already heavy heart. Some day, we will again be at the hospital, holding the hand of a dying person, with no hope of recovery, with tubes and machines and tons of doctors, asking God for one more day, knowing that each extra day means more suffering, going back and forth, up and down, watching the process of death. That person will be my child.

Hard to fathom that one. One too horrid to imagine, yet sometimes I do. How will it feel, how we will survive it? How do you make funeral arrangments for a child? How do you go on? Why go on? I let myself go there for a brief time and when it gets painful, I come to the land of denial. Denial is so much easier.

So in the process of letting my Grandma go... I too must process what may lay ahead for us.

I'm pretty sure I'm going to Hell.

Wouldn't someone who yells at a funeral director go to hell? Yes I did. Well let me at least explain myself before you shake your head and run away!!!

My oldest son and I were pallbearers for my Grandma's funeral. There were 8 of us, I was the only girl (I was the only granddaughter as well). When we got the funeral home, we were to park behind the hearse, so we would be one of the first at the cemetary. Well when we left, we ended up being the last car! The idiot directing traffic forgot about us. So we missed carrying the casket to the burial site etc.

So I chewed him a new ass. Right there, at the gravesite, in the rain, in front of the whole fam damily, standing in freshly dug mud!!! I don't care. He did a horrible job overall. My mom and aunts ordered 8 yellow roses to go in the casket, one for each Great-Grandchild. They forgot those. So he orders some real quick, brings them to the burial and waves them around, saying "I don't know what to do with these" Holy Cow! I finally grabbed 3 and placed them on the casket (they never went in the casket like they wanted). He was flippant and acted like he didn't care.

So I guess I'll be meeting him in hell........... but man it felt good to tear into him when I did. Not very tactful, but then that's me!!!

Of course I already have my handbasket reserved, after watching a bootleg copy of "The Passion of the Christ" and laughing hysterically at Monty Python's "Every Sperm is sacred" song...

You can all be ashamed of me now.....

Emotionally and Physically Drained.

I'm home from the funeral, after spending 3 days at my parent's house. Saying goodbye is so draining, entertaining family, ordering flowers, visitations and processions... all so tiring.

I saw some cousins I haven't seen in years which was nice. I think Grandma would have enjoyed having them come here while she was alive, but what can ya do?

You also see some not so good sides of people as well. I am unhappy with the way a few relatives behaved during this whole ordeal. But I guess time will heal those wounds too.

Now it's back to reality, a new reality of Grandma not being here in the physical world with us. I miss her so much already!

My Grandma passed away at 7:00pm tonight

On our anniversary too. I'm going to miss her so much. She taught me alot about life, which is what good grandma's do isn't it?

Thanks to those of you who were praying and sending thoughts our way.

I think Grandma is getting a chuckle out of going out with a bang!!! She's one up on Grandpa, who went in January and it was -20 when we buried him!

Death

Death and dying has been on mind since my Grandma fell ill. How do you explain death to a child like Alex? Abstracts ideas aren't exactly his strong suit. Sometimes even concrete ones escape him.

He got to see Great Grandma while she was really good. She was so excited to see him and give him a kiss. But to tell him this may be the last time you see her, much harder concept. Time... first time, last time..... Alex doesn't get "time."

I guess we'll just ease him into. He may look for her when we go down to my parent's house, probably sign Grandma is his cute little way and we'll have to tell him she's gone. I guess we'll tell him what we can and not make it complicated.

I know that after a few times, he just won't ask anymore. She won't be there and he'll be use to it. And Life goes on.......

I'm thinking...........

(you smelled smoke right?) that I should take a break from the online community boards for awhile.

I'm just not getting much out of it right now. It's becoming a chore. I feel drained by the people who need so much, yet when you ask for a simple prayer or good thoughts, no one is interested. Poor wittle me eh? Yup I think it's time to get a life, get some perspective, lose some weight, enjoy what's left of summer, enjoy my Grandma while I can.... blah blah blah. This isn't a pissy, I'm leaving, feel sorry for me, nobody luvs me type thing.... I just need to rejuvenate (and maybe I need a few margaritas). Life is kicking my butt and it's time to kick back.

I need to focus more on my child and family right now. Maybe when school starts back up I can reconnect.

It doesn't mean that I don't love the people I've made connections with or that I'm not keeping up with their blogs.... it just means I need to scale back on 'puter time.

At least these are my thoughts for now. Aren't you thrilled I shared them? OH wait, only two people read here so I'll probably lose them too! LOL I'm going to try to start blogging more about Alex and our adventures in T21! There's never a dull moment, but you'll probably argue with me on that point!

My Grandma....

is busy preparing for her next life, her crossing over if you will. I am sad. I've had her a long time, she's always been healthy and fit of mind. We took her everywhere with us! She was a part of our lives in

I will miss her, but I know it's time. I've fought the urge to beg God for more time, because I know the extra time would mean extra pain and suffering. That she doesn't deserve. But boy it hurts! I do want her here with us. She loves Alex so much, was always so accepting, so supportive. I guess we'll get that from above now.

So I hope Grandpa is waiting in the light for her, with his hand outstretched, whispering to her to come. Go Grandma... go with him!!! We'll see you soon enough!

I love you Grandma!!!

My Beautiful, Brave Boy!

Almost one week post op. He bears the scars. His little belly button is now an outtie for sure, one with a scab. It looks awful.

He has a two inch scar in his groin. The bandage came off today. It actually looks good (for an incision I guess).

He did his IG treatment today, with a modicum of crying and whinning. You'd think after having surgery, he'd be a bit more upset about having 3 needles inserted into his stomach. He wasn't happy by any means, but he wasn't hysterical either. My little trooper. No matter how many torture sessions he must endure (the infusions are once a week)... he endures them with grace. Everyone gets hugs and kisses, no matter the pain they inflicted a few minutes earlier. Well sometimes Mommy and Daddy have to bribe him back to sanity with treats...but he comes around!

I have to admit, I'm a wienie when it comes to medical procedures. I tremble at the dentist office and that's for cleanings! When I broke my toe last summer, I was off work a week! LOL I have tried to learn from my son, you know the one who's learning disabled, the one people would say "what could you possibly learn from him?" I've learned to accept the things I must do, no matter how painful, with grace and dignity. When I had to have a biopsy of my thyroid, I got 12 needles in my throat. I could see each needle as it passed my peripheral vision. I stayed calm by telling myself that Alex had endured countless blood draws, once a month IV's, 2 broken legs (one was let go over night before they set it) and numerous surgeries - so suck it up sister! And I did. The Doctor said he always worries about the quiet ones and kept asking me if I was ok (like I wanted to carry on a conversation while needles pierced my throat?). I just asked to him to try to keep the needles out of my eyesight. He didnt', but that's ok. I held it together.

My brave little boy, doesn't know what's coming, doesn't ask for it, but he gets more than his share of it. But he faces the hospital doors with his usual excitment (how many buttons can I push on the elevator?) and he's ready with a smile for everyone he meets. He sees Mommy and Daddy getting his treatment ready every Sunday, sure he fusses and whines, but he complies and we get wet, teary kisses after the needles are in and secure.

Sometimes ya just gotta suck it up sister!!!!!

What Kind of Weather are You???

I Am Lightning

Beautiful yet dangerous People will stop and watch you when you appear Even though you're capable of random violence You are best known for: your power Your dominant state: performing

What Type of Weather Are You?

What Freudian Stage are you in????

I Am in the Anal Stage of Development

According to Dr. Freud, you are stuck in the anal stage of development. If your parents didn't discipline you enough as a young child, you may be messy, reckless, and defiant. If your parents disciplined you too severely as a young child, you may be uptight, stingy, and passive aggressive. No matter where you fall, you are likely to have a few problems with authority.

What Freudian Stage Are You In?

We got through another surgery!!

Number 14 for my big guy. Hernia repair. He seems to be doing ok, although we have some swelling this morning. I have a call into the surgeon to make sure this is a normal part of the healing process.

The nurses all loved seeing him again and we loved seeing them too! We got to know them so well during our stint with IV IG. Now that we do it at home, we don't get see them anymore.... and I certainly don't want to wish any more surgeries on this kid, just to go visit!!

Thanks to those of you who kept Alex in your prayers on Monday. It was greatly appreciated.

What a week!

Seems like a lot can happen in a week. Tornados, floods, deaths....

Omaha has seen it share of storms this week. Two tornados were pretty damaging to property only, which is a relief. Then to follow, a tornado claims the lives of 3 Omaha Boy Scouts and one Iowan. So sudden, so young, so promising. There were flash floods in surrounding areas and of course we pray for those in Iowa right now.

Then nationally, the shocking death of Tim Russert. I lay no claim to being anywhere near interested in politics, but dang if I didn't stop to listen to Tim. I will miss him. He was strong, smart family guy... who just happened to have a gig on TV. I felt like I knew him... didn't you?

Prayers to everyone who has lost a loved one this week... Fathers who have lost sons and sons who have lost fathers.

Moving Forward

Although the popular opinion is to just move to the new school, just accept it, we are sending a letter to the Director of Special Education, requesting that Alex remain at his current school.

Didn't get much support from the Parent's group here in town, nor much from friends, we are at least going to ask. I feel we owe it to our son to at least try. Our family members were shocked and concerned, along with his daycare teachers. Of course all of us who will bear the brunt of change for Alex.... are concerned. We know what it took to get him this far and we know how much it will take once the work is undone.

While a 6 month adjustment period may not seem like a lot, to us it is. We don't know how long we'll have Alex here, and I want him happy and secure. I could give a rat's ass about middle school. If we get to middle school, I'll worry about it then.

That's it in a nutshell. I need to find other things to post about.

I am still mad, but more hurting than angry.

It's pretty obvious they don't want to give in and let Alex stay at his school.

I emailed his beloved teacher on the last day of school and asked her to make sure that he got to say goodbye to the people he loved at school. She never emailed me back. That really hurt. I thought she really cared about Alex, liked us a people, just not parents. We talked about our kids together, we laughed together and held onto hope together. I really feel abandoned by her right now. People tell me maybe she's hurting too, I dunno. I just know that I am and my child will when he has to show up at a completely new school next fall.

How do you tell a child why... a child who can't always comprehend the big picture? When he can't verbalize "where is my favorite teacher, where are my friends, where is my favorite custodian who gives me a hug everyday?" All he can do is worry inside and act out. And not act out in the most appropriate way. What do I say to him, when he starts peeing in his pants, biting his classmates and refuses to work? That sorry honey, the big ole administrators felt it's a duty to teach you all about change? Don't they understand they are really teaching to not trust, to not love people, because they leave? Because they make you start all over again? Nothing is familiar, nothing is the same.... and then they blame you because you misbehave? Because you're frightened and just want the "old" routine back?

I use to brag about his school, about his teacher. I was smug. We never had the problems other have had...Alex has never had to worry about being voted out of his class. We trusted and we felt safe. Until now..... today I eat crow.

I can't say I've ever hated much.... but I really hate these people right now. My child can't have the security of a long life.... the security of being well for a long period of time. He use to have the security of a loving school....now that's gone too.

The school says they're doing us a favor. Millard Public Schools.... you can take your favors and SHOVE THEM!!!

I'm mad as Hell....

and I'm not going to take it anymore!!!

Did I tell you I'm mad???? Millard Public Schools suck. They suck rocks.... right now I hate them, hate them, hate them.

Why do they always have to mess with the most helpless of children? Because they are bullies and these kids are easy targets.

I may not win my battle.... but I vow to be the biggest pain in their arses and make them as stressed and emotionally upset and unsettled as I am right now. I want them to lose sleep at night, I want their stomachs to hurt and their hearts ache just like mine do right now. Momma Bear is alive and kicking!

There was a time.....

when I thought I'd never hear Alex say "Mom." He could say daddy (deeee), kitty (keeeee) and puppy (peeeeee - of course he wouldn't say peeeeee when it came time for potty training, but I digress), but not even meeee or eeee for mommy. I'd coaxed and coaxed and would have taken Hey You or Yo...anything, but nope. I was just a grunt or a growl or a general point of the finger in my direction (hey at least he could identify me when asked!). I learned to accept it. Tis better to be a grunt or growl than nothing at all eh?

OK, I accepted it at times. Daddy was deeee and even sometimes Steven if I was yelling at him (which is alot) and this little voice in his broken english would yell steeeee at him. Why was mommy so hard???

He was about 6 when meeeee or eee finally came out of his mouth (you see the pattern with eeeee items). I was so excited! Finally I had a name, a purpose! Well the purpose wasn't always one of grandeur... usually it meant he spilled something, broke something, was hungry or pooped his pants... but hey I had a name!

Now it's Mom. And I hear it constantly... Mom..... Mom... MOOOOOMMMMMMM! Again, it usually means Mom... I screwed up (insert spilled drink, broken item or pooped pants) but sometimes he just yells it out so he knows where I am. It's re-assurance that he's not alone.... Mom..... Mom.... MOOOOOMMMMM...... and once I yell "What" back at him, I hear a big sigh of relief... like all is right in the world.....

Happy Mother's Day to all of you wonderful moms!!! If you're not the momma... then go hug yours!!!!

My Poor Guy

Alex has been through so much medical testing lately, it's bordering on insane. He's been potty trained for a good long time now and suddenly in the last month or so, he's been wetting his pants and have the occasional blow out (yes of the worst kind!).

We at first thought it was a behavioral issue, trying to get attention. But it's gone on and on. I talked with his teacher (she's had Alex for 3 yrs now so she knows him well) and she doesn't even think it's a behavior issue or an attention seeking behavior. Soooo poor Alex, has peed in the cup, had sticky paddles stuck to his butt (don't ask), blood work, an ultra sound and finally this week, an MRI of his spine and bladder. All normal.

So now we're down to behavior or his ADHD meds. UGH.

He is seeing an urologist on May 15th and that's our final round in the medical field. Next is a developmental ped and/or psychiatrist.

I still feel like we're missing something medical. Or I'm in extreme denial that this is behaviorial. Ok... I am in denial about that. Behavior is oh so hard to fix and this kid is stubborn!!!! I am so disappointed that we've had to go back to carrying a diaper bag and putting him in pullups at night. He's been out of pullups for so long..... I'm just frustrated that he has regressed to a point where we're afraid to take him public for fear of a huge blowout diaper in the middle of JC Penny's!!!

Boy some days of having a child who is practically non verbal and stubborn can be rough. These are days when I need to count blessings instead of whine!!!

World Down Syndrome Day!

Much love goes out to all the friends I've made since Down Syndrome came into my life.

For those of you who believe that down syndrome is a burden and takes away from life, we are here to tell you of the blessings, the joys and the love that down syndrome has brought to us! Visit my friends on the right and visit their friends! Proof positive!!!

Happy Down Syndrome Day to my bestest friends and their beautiful children!!!

In Acceptance of Snot

Sometimes I find myself very witty. I was posting on my dear friend's (Christine) blog about her son and his sinus infections. I'm such a buttinsky!! I had a revelation while typing my words of wisdom.

We've accepted snot. We fought it and fought it and at last, we have raised the white flag. Snot is no longer our enemy.

Peace my friend snot... hail all boogers of green, yellow and dried blood red! We applaud the rare yet ever so entertaining, bubble O'snot, should one be so lucky as to catch a glimpse! You store our bits and pieces of M&M's, mini legos and the occasional spaghetti noodle (which dances in and out like a king cobra to a snake charmer) without nary a complaint. You hide under desks and tables, drying with age. And what a prankster you can be, as you dangle out of the nose of some poor soul who has no clue you're even there! We have snot rags, snot face (you've all seen Drop Dead Fred right?) and snot fights. The streets are slicker than snot tonight thanks to the ice storm.

So after 7 1/2 years of all out snot wars... we've come to acceptance. It's a part of Alex's life and always be. I'm thinking Kleenex loves us! And whatever company makes rocephin... Alex should be their poster child!

Everyone raise your box Kleenex in honor of SNOT!!!

Someday they're going to find a good use for it and we're gonna be rich!!!!

My Grams

I have to post about my Grams, who is going to be 90 on the 25th. We're having a family luncheon and then open house for her. She's sooo not into having parties, so she doesn't know about it yet. We decided it was best left a secret until we get closer.

She's doing so well and is relatively healthy. I am so fortunate to still have her around and have her of sound mind and body. She loves Alex and plays ball with him. Now I'm not saying she doesn't love her other grandchildren and great-grandchildren, she just has a special place in her heart for Alex. I'm the only grand-daughter out of 8 grandchildren, so I was spoiled as a child. Her and grandpa took good care of me through the years. We were all so sad when we lost Grandpa 15 years ago. I think he would get a kick out of Alex today... he was ornery much in the same way! LOL

Happy Birthday Grams! Here's to many more!

Alex was tagged by his best bud....

Brady for the love/hate meme.

Alex loves....

Grandma, Great Grandma and Grandpa
Matt
Jenny
Daddy
Curious George
Ice cream cones!
puppies of any size
horses
Disney World
His ENT Ann and his ped Mary
bubbles
balls
balloons
cake with tons of frosting
candy
swinging
running
jumping at Bounce U
swimming
playing in the rain and in the snow

Alex hates

haircuts
needles
the dentist (sorry Dr Cade - but I hate them too!)
medicine
baths
getting ready for school
going to bed
getting out of bed for school


I'll tag Nash and Mikey (if mommy even reads this! LOL)

~*~*~ HAPPY 8th BIRTHDAY SWEET BOY ~*~*~

Where does time go? I cannot believe it's been 8 years since my little guy came into this world.

I don't think I've ever posted his birth story. I wonder if I can remember it all? This old momma has aged since then....

His due date was between Jan 23 and the 30th. The perinatalogist wasn't going to let me go past that date, as he felt he was a big baby already. I stopped working on Friday and was hoping for a week at home before Alex arrived. We hadn't fully decided on a name yet either. We knew we were having a boy.

I had lots and lots of ultra-sounds. We probably should have had a clue at that point that maybe something was up. I also had tons of amniotic fluid, another sign, but I didn't know that then.

I woke up the morning of the 26th, feeling crampy. I asked Steve to stay home from work, but he just had to go in (personally I think he was terrified of the upcoming event!). About 9:00am I told him to come back home, this was it. He rushed home and we packed up and headed for the hospital. It was probably a bit too early, but I hadn't had a baby in 14 years, I thought we should go. We got all settled and got hooked up to the monitor etc. I was going to see how things went, holding off on the epidural at first, but I knew I would have no qualms about asking for one. I think it was about 4:00 when I finally asked. Once it was in, I said "I love anesthesiologists!!!" I think that made his day. Of course this slowed things down. I think they broke my water after that. All three of my babies had to have the water broken at the hospital... just a bit of trivia for ya.....

I probably started pushing about 7:15 or so. Took awhile to get dilated to 10. Alex was born at 7:51pm. The OB first words were "Holy cow somebody weigh this kid!" He came in at 10 lb 3 oz. He looked perfect! Once we held him and oohed and aahhhed... they took him off to clean him up etc. We were happily getting stitched up and chatting. Steve went to check on Alex. He came back a few minutes later with a funny look on his face. I knew something was wrong. He said that Alex had aspirated on the sugar water and they were working on him. I asked if he was ok and he said he didn't know. It took them awhile to come in and tell us what happened. We now know that the NICU nurse, Marilyn, had picked up on the extra chromosome and they took him straight to the NICU. We still were clueless. Steve went home and I went to my room.

I was treated poorly by the nurses. They told me I could only call for help 2 times and them wheeling me to my room was 1! I was kind of surprised, but was so tired and sore I didn't question it. I think they all knew and I didn't want me asking them questions they didn't want to answer.

The next morning, the neonatalogist came in and broke the news abruptly and left the room. We waited until Friday to get the FISH test results and it confirmed Down Syndrome. I went home Friday without my baby! He was in the NICU and outweighed any 3 other babies in there, put together! I think that was more heartbreaking, leaving him behind, more than the T21.

After 15 days in the NICU and some harrowing medical situations, he came home. And the rest is history.

Considering most of our doctors thought he wouldn't survive his first year, here we are at #8!!!

I love you little boy!!! You can be trying and ornery and stubborn, yet sweet, cute and cuddly. You've brought so much joy to our family... I can't imagine life without you!!!

Happy Birthday!!!

I've been tagged!!

By my good friend Nic. In turn I am tagging Christine and Monica. The meme is "What I love and What I Don't Love (or What I Hate).

I love my family
I love my friends
I love summer
I love asiago cheese bagels with cream cheese
I love napping in the afternoon
I love snuggling with Alex
I love to shop
I love to travel
I love to have a cup of coffee and read the paper in the morning
I love the beach
I love the mountains
I love to fish
I love sweets
I love Coke (the kind in the can!)

I HATE cancer
I hate hate
I hate raisins in anything
I hate coconut in anything except suntan lotion
I don't love people who litter
I hate people who hurt children (born and unborn)
I hate war
I hate going to work everyday (where's that lottery ticket?)
I hate all the campaign ads right now

I know there's more...... Thanks Nic for getting me back on my blog!!!

What's the recipe for your personality??

The Recipe For Rhonda

3 parts Desire 2 parts Fascination 1 part Impishness Splash of Imagination Finish off with whipped cream

What's the Recipe for Your Personality?

What a year we've had!!!

It's been a big year for us. First we got to meet Mickey Mouse and all his friends at Disney World. We got to meet Curious George at the zoo (we stood in line to meet George for a lot longer than we had to wait for Mickey!!) and Alex got his picture on Times Square for the New York Buddy Walk.

My friend Laura Q was kind enough to snap a shot of it as it whizzed past on the Jumbo Tron. I love it, as I was so disappointed to not make the big trip to the big city!!! So here it is, in all it's glory!!!

Guess what I got for Christmas????

If you guessed a guitar and some M&M's (note the chocolate mustache and beard) you are correct.

Merry Christmas from my little Guitar Hero!!!

For my dear friend Annette

heaven will receive a beautiful angel and we on earth are losing a beautiful friend! I know that you are surrounded by beauty and light.

Until we meet again........

Another Fun Christmas Poll

You know I'm gonna tag you Christine!!!!

1. Wrapping paper or gift bags? Both

2. Real tree or Artificial? I prefer real, but we have an artificial

3. When do you put up the tree? Usually by 2nd week of Dec

4. When do you take the tree down? As soon after the 25th as I can

5. Do you like egg nog? ohhh yeah

6. Favorite gift received as a child? Easy Bake Oven

7. Do you have a nativity scene? Yes

8. Hardest person to buy for? Steve

9. Easiest person to buy for? Alex

10. Mail or email Christmas cards? snail mail

11. Worst Christmas gift you ever received? Hmmm I don't recall

12. Favorite Christmas Movie? A Christmas Story

13. When do you start shopping? Way too late

14. Have you ever recycled a Christmas present? No

15. Favorite thing to eat at Christmas? Ham and Christmas cookies, no not together!

16. Clear lights or colored on the tree? clear

17. Favorite Christmas song? Hark the Herald Angels Sing

18. Travel at Christmas or stay home? Home

19. Can you name all of Santa's reindeer? Yes

20. Angel on the tree top or a star? Angel Bear

21. Open the presents Christmas Eve or morning? Morning

22. Most annoying thing about this time of year? The messy slushy snow while shopping

23. Favorite ornament theme or color? Country looking

24. Favorite for Christmas dinner? Ham

25. What do you want for Christmas this year? Leather Jacket

OK.... tag you're it!!! Christine, Jan, Tara Marie

Tagged by my Favorite Utah gal!

You can go visit her here.

What is your favorite thing about the holiday season?
Seeing all the decorations go up, whether it's at the stores or work or home.

What is your favorite holiday memory?
Santa Claus would always bring us these huge red apples! Yes we had apples alot and we even had apple trees, but those big shiny red apples were my favs!

What is the best gift you ever gave?
I'll have to think on that one!

What is the best gift you've ever received?
An Easy Bake Oven!!! LOL no one of the originals... the ones that could burn your house down.. no safety codes back then! I loved it.

What is your secret holiday wish this year?
Now if I tell, it won't be a secret

I really like Alex's new doctor

WOW! Talk about putting a new perspective on things! I think we needed to change immunologist and I think we waited too long. Our old Doc just gave up on Alex. He wasn't looking to find any new treatments or options etc. This new guy is so enthusiastic about finding something to help Alex, it's amazing how much my attitude has changed.

We're upping Alex's IV dose and doing it every 3 weeks instead of 4. After December, we'll more than likely go to the subcutaneous IG rather than the IV. It is once a week, but less traumatic and less time off of work. We can actually do it ourselves at home if we want.

This is the first time in over a year that I don't feel like my child will be dead in two years. I know he can't cure Alex, but it sure is dang nice to have someone at least fight!

Thank God for the doctors who still give a damn!!!

UGH! Another short bus reference!

I love Sell This House on A & E. I've watched it for the past couple of years. But today I was blown away, when during the episode, the homeowner said "yeah it turned out short bus yellow" WTF??? I couldn't believe that they left the comment in. So off I head to my computer to shoot an email to A & E. So I searched for the episode and what did I find??? Holy Cow! They actually quoted the lady on their website!!! Like she offered up some kind of profound wisdom!!!

You can read the offensive episode description here. If you would like to email A & E, you'll find them here feedback@aetv.com. I also managed to find Tanya Memme's email addy, so I thought what the hell, I'll fire one off to her too. If you're gonna throw your big ole ta ta's around like someone important, you better be ready to take the heat! TanyaMemme@gmail.com

I also emailed the ARC and NDSS. I tried that the last time I heard a nasty remark made in a TV show, but I got little response. But hey I try!

Shame on you Sell This House. Shame on you A & E TV!!! May your show get cancelled and they replace you with Danny Bonaduce!!! Now that's karma baby!!!

Halloween Tag

From Christine....

What was your favorite Halloween costume as a child?

My mom actually had a poodle skirt from her high school days, so my friends and I dressed up as 50's girls.


What was your least favorite Halloween costume as a child?

We use to have to wear those store boughten costumes, the one with the plastic masks and a little slit in the mouth so you could breathe. I don't remember which one I picked, but I remember it being cold out and yet sweating behind the mask... yuck!


What was your favorite Halloween candy as a kid? Is it still your favorite?

Any chocolate bars. Next came Smarties and bubble gum. My brothers and I use to swap for the candy we liked. Sometimes we got a huge full sized candy bar or money!!! I still love Snickers and Baby Ruths!

How old were you when you stopped trick-or-treating? Do you miss it?

The last time was the poodle skirt and I think we were 13. We had a blast.

What's the scariest movie you've ever seen?

Hmmmm..... The Omen, I know there's others, but I can't think of them... I'm not into the Halloween ones etc. I don't much care for the slasher movies either.

And - have you ever dressed up in "matching" halloween costumes with your date? What were they????

Nope.

Now who to tag.... hmmmmm. Monica (cause she'll never read this and do it!), Jan and Beth. I don't have 5 friends! LOL

I'm exhausted.

We had a glorious time in Indy!!! It was wonderful to meet all the people I've been chatting with for over 6 yrs now! The children were beautiful and fun and active! Jan and Jeff were wonderful hosts, I don't know how they did it all!

Smooches to all of you... oh you know who you are!!!!

Where do we meet up next year???

What should you be for Halloween?

Your Halloween Costume Should Be

Elvis

What Should You Be For Halloween?

A cute girl

Went to lunch with my oldest son today, we both we're bumming around. Went to Jason's Deli. I love that place for lunch. It's as close to a New York deli as you're gonna get in Nebraska! LOL

Anywho, who should appear in the restaurant but a cute little girl, probably about 8 yrs old, gorgeous white blonde hair and a stunning smile. Yup she also had that extra chromosome.

I kept watching her interact with her older sister and someone who had a young baby with them. I tried not to stare... but I couldn't help it. It's irresistible... really it is. You just want to see how other families interact, how the child is doing etc. She was kind of a monkey... hehehe... just like Alex!!! They would have been an ornery pair together!

I tried to give the mom the "I get it" smile... I hope she understood. I wasn't one of those rude, irritating people.... or maybe I was after all??? Hmmmm....

Missed it by this much..........

I intended to blog yesterday, I really did.... but ya know, Sunday night TV is my night! ABC rocks it on Sunday night!!!

Anywho, I wanted to post about what a wonderful afternoon we had, just the three of us. We had shopping to do and Mommy was on a mission for a rug. It took us 3 stores and driving all over Omaha to find it. I'm not really fond of it once I got it home, but it was such a hassle, I'll keep it for now. But I digress from the fun. We stopped at DQ and got hot fudge sundaes!!! Now if you don't know by now that my kid likes ice cream, where have you been? Off reading other blogs and not mine! LOL

My point being is that it was soooo "normal" stopping for ice cream on a warm Sunday afternoon, enjoying the weather and the company. Many people think because you have a child who doesn't fit the mold of "normal" nothing in your life is normal. Couldn't be farther from the truth!!!! While he was licking the bowl and getting fudge all over his face, I realized we are your typical family, complete with a messy, fudge covered kid!!!!

So to the family staring at us.... we are soooo more like you than different from you.... next time enjoy your treats and family time and stop staring!!!!

Tag - I'm it.

Thanks to Kei she tagged me with this little tidbit for our 31 for 21 (thank goodness as I was not coming up with a good idea today!)

What I have learned from Alex:

Prayer
Self-sacrifice
Unconditional Love
Courage
Sleep Deprivation (you asked)

What I wish for Alex's future:

Happiness
Courage
Love
Adventure
Dreams


Your turn!!!

Friends.

On my continuing quest to meet the 31 for 21 ( minus 2 for me so far), I am thinking about my online friends.

I found them on Parent's Place when Alex was about 1. We had struggled to keep this kid alive his first year, I didn't spend alot of time on the computer. I had no idea these communities existed even! I did the usual searches when Alex was born, and eventually I came upon Maddy's (Amy O's sweet daughter) story. She had just passed away. That drew me into the world of online communities. I wanted to know more about her and the wonderful ladies who were posting to her. I didn't know that others felt the way I did....I didn't know many people IRL, who had children with T21.

And I'm glad it did. I have met some of the best people in the world and a few of the really bad ones too online!!! A sub-set of the bestest ones I am going to meet in person next week and I cannot wait! We know so much about each other, our lives, our hopes, our heartaches and to think we've never met in person, yet we have built such bonds, seems impossible. I would welcome any of them into my home and I'm pretty sure I'd be welcome in theirs. I cannot wait to hug them and hug their children, to look into their eyes, to really know them. Although the farting dogs can stay home!!! hehehe

One little chromosome.... packs a wallop huh?

Just like other kids.

Alex didn't want to get out of bed this morning. I talked and chajoled and tickled, but he just buried his head under the pillow, saying no no. Just like other kids.

He complained while getting clothes and complained about combing the hair and brushing the teeth. Just like other kids.

And shoes??? The ultimate in concession..........he had to go to school, just like other kids.

But mommy got a big ole wet sloppy kiss before he left with daddy!!! Mommy was happy... just like other mommies!!!

It's not about the differences.............

I know where stubborn is!

I don't need a PhD in genetics. I don't need to spend years and years in a lab, experimenting on rats. I know exactly where the stubborn gene is!!! (I anxiously await my Nobel Prize in Medicine!).

It resides on the 21st chromosome. Yes I am positive about this. And guess what? My son just so happens to have an extra 21st chromosome........ so you can draw the conclusion he is extra stubborn!

If you want proof, please stop by my house at about 6:45am and try to get him up, dressed for school, give his breathing treatment, comb his hair, brush his teeth and give him 2 other meds. I don't need a fancy dissertation.... I don't need a hypothesis.... I live it each and every day. Come on over you'll see I'm right!

PS. I also believe that the Y chromosome carries some pigheadedness.... I have two sons and a hubby..... the one son with the extra 21st chromosome..... God give me strength.

Get it Down, 31 for 21.

I'll admit up front... I won't hit 31... hey I'm starting on Oct 3rd for pete's sake! LOL But I am gonna try. Click the button below to read more!!!!

I shamelessly stole this from Kei

but I really really liked it... so here goes...

Matt was born on a Monday

Monday's child is fair of face.
You are good-looking, especially when you smile!
You are beautiful inside and out.


Jenny was born on a Tuesday

Tuesday's child is full of grace.
You have many talents, and are fun to be around.
You dance through life!

Alex was born on a Wednesday

Wednesday's child is full of woe.
You are a serious person, and try to change things that seem unfair.
You make the world a better place!

Steve was born on a Monday

Monday's child is fair of face.
You are good-looking, especially when you smile!
You are beautiful inside and out.

And I was born on a Sunday

But the child born on the Sabbath day,
Is fair and wise and good and gay.
You are sunny, fun, and loving.
You bring much joy to other people!


I think they fit! If you'd like to find out your birth "day" click here

And you can find my good friend Kei here

Which Rocker Chick are you?

I am Avril Lavigne!

A bit hardcore on the outside... But sweet and sensitive on the inside. "It's a damn cold night Trying to figure out this life"

Who's Your Inner Rock Chick?

Time is flying by!!

Holy cow. One minute it's 105 out and now it's 75 and a cool breeze!!! Where the heck did summer go? I love fall, the smells and colors, but I sure do hate winter! I am not a snow bunny. I am a fun in the sun bunny! (Ok I'm a big ole lumpy bunny who eats too much ice cream and candy!)

Alex is recovering from his pneumonia. We were fortunate to catch it early and not spend any time in the hospital. He still needs his breathing treatments, but we are done with the antibiotic. He loves school and is doing well. They've already had one field trip and have another next week. Must be nice!

I saw a precious little blond haired boy today at the mall. Complete with that extra chromosome! Big brother was pushing him around in the stroller and he was squealing! LOL I recognized his mom, but she was busy trying out new makeup and I didn't want to interrupt! I know what it's like trying to pick out makeup when you have all the kids with you!!! It was fun to see him enjoying the fast ride!

My Poor Little Guy Has Pneumonia

He's doing fairly well, after 5 shots of rocephin and breathing treatments. He was just starting it when we caught it, so he didn't end up in the hospital. He tires easily and gets cranky if things don't go his way (ok he gets that from his dad!).

He's so excited for Grandma to come on Sunday, so I'm hoping he's well by then. He's been out of school since Thursday.

It's going to be a long winter if we're starting this already in August!!!! *SIGH*

What's in a name?

Ok I know you're suppose to wait to be tagged, but heck that could be ions for me!!! LOL I thought this looked like fun and I only have 3 letters in my middle name!!!

What's in a name?

1. You have to post these rules before you give the facts.
2. Players, you must list one fact that is somehow relevant to your life for each letter of your middle name. If you don’t have a middle name, use the middle name you would have liked to have had.
3. When you are tagged you need to write your own blog-post containing your own middle name game facts.
4. At the end of your blog-post, you need to choose one person for each letter of your middle name to tag. Don’t forget to leave them a comment telling them they’re tagged, and to read your blog.

K - Kick Ass Quality Assurance Analyst

A - A lame Blogger

E - Exceptional Klutz (hence the broken toe)

Ok so I'm gonna tag.. Christine Rissy Jan

If I can make it there.... I'll make it anywhere...

New York New York.

Here's the photo that the NDSS chose for the Times Square Video! We're tickled pink!

I wish we could go out for the Buddy Walk, but it's just not going to work out. I'm hoping one of our East Coast friends will snap a pic when Alex is up in lights!!!

A Sweet Little Angel Gets Her Wings

Gabi, you were here only a short time, but made a great impact on many. As someone put it, you left footprints on my heart.

Rest in peace sweet angel.....



To read her story, click here.

Love Maxine!

Which one can you relate too???? LOL

First Day of Second Grade!

Of course we didn't get a picture... what do you think we are??? Good parents??? LOL

We've all been sick with a nasty summer cold and mom is the latest casuality! I got him dressed, his backpack loaded and daddy took him to daycare. I went back to bed!

I can't believe my little guy is in second grade. He loves school. He gets to be with his girlfriend Kyra again too. They've been together since they were 3!!!

I'm hitting the couch! Dr Keith is on! Enjoy little man!

Back on the Diet

Ok, I'm back on the diet. I've gained back a few pounds from my last go around and the ole waistband is starting to get snug. Doesn't help that the toe is still causing me problems and I can't really walk much.

So goodbye Dingdongs.... goodbye Dairy Queen...goodbye french fries! I'm sorry to see you go and I am having major withdrawls right now.... can't someone invent carrot sticks that taste like Godiva chocolate????

Give Kids the World

I was thinking about GKTW today, after Alex wore his T-shirt from there. What a magical place. It makes me sad to think we won't ever go back. I would love to take him back next year, he loved it so much.

If you're so inclined to find a charity, I highly recommend this place. If you know of a terminally ill or a child with a life threatening illness, please direct them to Make A Wish and GKTW in Orlando. I cannot stress enough how every child was just a child, no medical issues, no handicaps, no differences. What a break from the grind of everyday living. Not to mention the ice cream shoppe rocks!

Here's some links.... including our personal pics from there! Check it out! And thanks for reading.

Give Kids the World

Donate to GKTW

Our Pics from GKTW

Quote of the Day

Love it!!

I am not bound to win, but I am bound to be true. I am not bound to succeed, but I am bound to live by the light that I have. I must stand with anybody that stands right, stand with him while he is right, and part with him when he goes wrong.


-- Abraham Lincoln

Name your Va-Jay-Jay

Here's mine.... what's yours????

Your Girl Parts Are Named:

Heart Shaped Box

Girl Parts Name Generator

I really wanted sunflower seeds today.

I have an intense craving for sunflower seeds. What do you suppose that means? I had a wonderful hamburger at lunch, complete with the forbidden bacon and cheese and a chocolate chip cookie to boot. And yet the craving for sunflower seeds persists. I may try to banish it with an ice cream drumstick.......

I am working from home this afternoon. Playing hookey. I met my girlfriend Sarah for lunch and once I got out of the building, I decided why go back? All the bosses are out of town....good time to go AWOL. But really can you go AWOL, if no one is around to notice you are AWOL? hmmmm Such deep thoughts to ponder today.

I should hobble out and water the new landscaping. There is a slim chance of rain and I am holding onto that chance, rather than leave the nice, cool, comfy basement and my 'puter! If it does indeed rain, maybe I should run out and buy a lottery ticket...... did I mention it has only rained once since May 31st? Think I'll be saving myself a dollar........

Many prayers today!

Two of my really good online friends need some prayers.

First is Annette, mom to Ryan and Kurtis, who is battling cancer. The tumor is continuing to grow and her next move is a new clinical trial. She is one great lady and the thoughts and prayers are needed! I wish I could go meet her this weekend as she visits my good friends Jan, Nicole and Shannon! Girls hug her a couple of times for me!!!!

Also for Andi, who is having exploratory surgery on her ovary. The Dr's are hoping it's a fibroid. Her son Riley and daugher Em are cutie patooties! Many thoughts and prayers are needed here as well.

Cancer is a terrible thing. We need to find a cure!

Crutches are no fun.

Not that I thought they were really, but now I know they are not.. for sure!

As graceful as I am, I managed to break my toe yesterday. While the other 4 toes on my left foot, pointed to right as they should, the 4th one was pointing out to the left. It wasn't a pretty sight. Went to the ER to make sure I didn't break any bones in my foot, they took an Xray and said yup it's broken (no shit sherlock, what was your first clue?), taped it up and sent me out with a lovely blue boot and some extra tape. I'm at home today, with it propped up. My parking garage is 2 1/2 blocks from my building.... my armpits are screaming already from the crutches, I surely didn't want to try that! I'm such a whiner.

Wouldn't ya know it. I had just gotten out of the shower and had removed all my pretty polish too!!! So I went to the hospital with straggly wet hair, no makeup and one toe headed the wrong way, all toes with no polish! No wonder they asked me all those domestic violence questions! I must have looked sweet!

It's a lovely shade of purple today. Poor Alex, he was so upset that mommy was upset! I'm sure all the nasty names he heard me call the leather chair that jumped out and snapped my innocent toe didn't help! LOL When I got home, he kept pointing to his toes and saying hurt! He loves studying the tape too. Not sure I want my feet studied that much (unless it's by Johnny Depp or George Clooney)!

Today is all about me and my achy breaky foot!!

Where is summer going?

Seems like it took it's sweet time getting here, now it's whizzing by me so fast, I'm afraid I'll be Christmas shopping in another week!

After reading Emma Sage's blog, I want to go to the county fairs, pick wild berries and watch fireworks! I want lazy days at the beach, family picnics and catching lightening bugs in a jar! Maybe Emma and her momma have room for a worn out mom and her ornery little boy (look out Nash......)????? LOL

I'm hoping the landscaping gets done this week. We've waited so long and now the heat is upon us. I can't wait to get a birdbath in the new flower bed and be able to watch all the butterflies and humming birds from my sunroom. Curl up with a good book and watch the wildlife (as much as you can get in the city that is).

Alex is doing really well at daycare this summer. We were concerned that behavior might be an issue. He's been blessed with a really good teacher who knows how to handle him and loves him to pieces! He is managing to stay healthy somewhat, although the sinuses and ears continue to plaque him. We've also seen a dermatologist for his alopecia. We are seeing some regrowth in one spot, which is encouraging! I hated adding yet another specialist to our list, but the balding was getting so noticeable.

Have a happy and safe 4th of July!!! God bless our troops and keep them save!

I am properly shamed.

I am a terrible blogger of late. Mostly because there is nothing exciting going on and why bore you?

Alex is taking swim lessons and he loves it. He is doing ESY for speech and seems to be doing well with that too. He is really trying to talk. And we are on top of the potty training. Not quite ready for real underwear but getting close.

We're hoping to finalize our landscaping bids and get that going. Our house sorely needs some sprucing up. But boy is it expensive. I wish we weren't such lazy asses, we'd save ourselves a bundle!

You know it's bad when all I can talk about is poop and landscaping. *Sigh* Such is my life!

Look who lost his first toofy!

Lucy - we're home!

I'm so tired, so here it is. I probably missed a few details, but what a great time we had!

Day 1

We had an awesome time at Give Kids the World and Disney! GKTW really knows how to treat families with young and sick children. Alex absolutely loved it. We couldn’t keep him off the carrousel! And we put a dent in the ice cream at the ice cream shop.


They really do a great job with the kids, it is all about the kids. I would highly encourage you to donate to GKTW or Make A Wish if you ever have the opportunity. It means so much to the families and it is a wonderful, magical place! I know sometimes you wonder where your dollars go when you donate and I have to say, this place is well worth it!

Day 2

On to Disney. We started out at the Magic Kingdom. Seeing the castle for the first time is awesome! Pluto was waiting for us at the front too! Steve called him Goofy and Pluto thought that was funny. Then we were off to meet Tigger and Pooh and ride the Dumbo ride. Alex enjoyed that. Then Mary Poppins met us at the carrousel and rode with Alex on that! That was fun. All the little girls wanted her attention, but she talked to Alex the whole time. He’s so like his dad – attracting all the females!

Then we ate some wonderful but very expensive hot dogs and moved on to Mickey’s Toon Town. There is where we got to meet Mickey! We actually got about 10 minutes alone with Mickey in a private room. I guess that’s quite unheard of! We all enjoyed it! We then got to meet Minnie, Goofy, Chicken Little, Chip and Dale, Daisy and Donald Duck. Chicken Little thought it was cool that Alex had glasses too! Daddy wanted to meet the princesses, but mommy said no.

By this time, the crowds were getting thicker and the humidity was rising. Also the love bugs were “in season” and it was quite gross, so we headed back for the Village. We hit the waterpark and swimming pool. That was refreshing. And of course we snagged plenty of ice cream!!

Day 3

Off to Seaworld. It was packed full of people. Rude, annoying people. And more love bugs. And humidity and smoke. Alex really liked the manatees and feeding the dolphins and the Budweiser Clydesdales. We got good seats at Shamu, but not in the soaker section. We enjoyed it, but it was long on video and short on Shamu and friends. I think they could stand to change that a bit.

All and all, we were not impressed with Seaworld. Steve and I have been to the one in San Diego and thoroughly enjoyed it. Orlando, not so much. It was dirtier and crowded and the employees were rude. They sure didn’t treat Alex like the Disney folks did! We ended up going back to the Village, doing our usual carrousel rides and ice cream!!! Grandma and Alex had Ms Mary’s pizza while Steve and I went to Joe’s Crab Shack for dinner.

Day 4

Was Downtown Disney and City Walk at Universal. We were bummed when we got to Downtown Disney at 10:00am only to find out most of the stores didn’t open til 10:30! We didn’t like the first area we went too, I guess where the Cirque de Soliel is. Kinda dirty and not much going on. More of a night time venue I think. We did head up to the Marketplace and liked that much better. Did some shopping and ate lunch at Mickey Dee’s. Alex was in no mood for a sit down place at all. I did get into a fight with an employee at one of the gift shops. I collect spoons and finally found one. So I took it up to pay for it and she told me it was on the sale rack, buy 4 for $10. She wanted me to go back and look for 3 other items. Well it was all junk. Most of it was dated 2006 too. So I found a Bruce keychain and took it up. She wasn’t going to sell me them unless I picked 4 items! I finally screamed at her to sell me the damn spoon for $10 and I didn’t want all that other crap. Finally she sold me Bruce and the spoon for $10. Geez. We left there and headed for Universal Studios.

We only did Citywalk at Universal. We hadn’t bought my mom a ticket for the actual park and Alex wasn’t in a good mood either, so we decided to skip the whole theme park part. So we hit Hard Rock for the proverbial bear and t-shirts purchase and had a huge ice cream sundae there too (you’d think we’d be ice creamed out by now huh?). We also hit Margaritavilles and bought some t-shirts and Alex really wanted Scooby-doo until we got into the store and then he really wanted Cat in the Hat. So the cat won out over the dog. Again it was muggy and smokey, so we headed back for the Village. We did hit an outlet mall for a bit on the way back.

This night was Winter Wonderland. It use to be Christmas, but because of religious views, they changed it. It really was a magical night. They even made it snow!!! Santa gave out presents and we rode in a horse drawn carriage. Alex danced with the snow princess and some elves! We really enjoyed that night. Lots of fun. Of course Mayor Clayton and Ms Mary had their Christmas outfits on! We got the biggest kick out of the parade. This lady was dressed as a Christmas tree and had presents on her feet and she was a bit “out there” if you know what I mean. We laughed our heads off at that one! We rode the train around the village and Alex got to help conduct!

Day 5

Off to Animal Kingdom (after the required breakfast at the Gingerbread house of course). Alex didn’t have a good day here either. Too much walking without a lot to look at for him. He did get to meet Safari Mickey, Goofy and Donald though! We petted the goats and tried to get into Finding Nemo. I do have to say that Finding Nemo was one area that Disney let us down. They have no access for wish kids. We were very upset and disappointed by this. I went to complain at Guest Relations, but Alex was melting down and it was hot and we were all hot and tired and mad, so we went home again for more swimming. Mommy and Daddy went shopping at a mall while Grandma and Alex had dinner and hung out at the Village.

Day 6

Off to MGM. Alex enjoyed this park the most. He absolutely loved Playhouse Disney and danced along with the show. It was nice and cool too…. Nice cool sit down thing! It was very hot this day, the hottest of the trip. We got to meet Jo Jo, Sorcerer Mickey, Buzz and Woody and Mike and Sully. We also did the Great Movie Ride. Alex was a bit scared, but he managed to hang in there. Again another cool, sit down ride! We ate lunch here too, near the Star Wars ride. We missed the storm trooper by a few minutes. I hear Darth Vader shows up, but daddy was too hot and tired to go back. Grandma had a few Disney dollars left, so she bought a t-shirt finally. We headed back to the Village for Mayor Clayton’s birthday party. Alex didn’t want to hang around much that night, but what we did do was fun.

GKTW

Each day we would come back to the Village to find another present on the table for Alex. That was fun to get a surprise each day!

We met some new friends, including Molly and Ben (who also has down syndrome). The volunteers who work there are phenomenal (except for the one stoopid lady in the Castle who wouldn’t let Alex ride the carrousel, yes I went and told on her). They do not discriminate or leave any children out, no matter what the activity. It was nice to be in a place where all kids are equal. We didn’t have to worry about being different. Some of the parents commented on that as well.

Our favorite activities were Winter Wonderland (every Thursday), where Santa Claus comes to visit and brings toys for all the good little girls and boys! Alex picked Alex the Lion from Madagascar of course! Mayor Clayton (the bunny in charge) also had a birthday party (every Saturday). Lots of music and face painting and bubbles and cake! He also loved helping in the Gingerbread House, after meals, by taking all of our dishes up after we finished eating. We all enjoyed our daily breakfast buffet, I sure miss it now!

Hi Ho Hi Ho... it's off to.........

Disney we go!

Catch ya on the flip flop!!!!

I am one brave girl.

I am terrified of heights. My new company has a 19 story building (ok on the great plains out here that is HUGE - this ain't no New York City) and I work on the 4th floor. Our atrium is open all 19 floors and all conference rooms open to the middle. I have a very difficult time during meetings, looking out over that vast, open, empty space. You cannot get away from the fact that you are up a few stories, you can see out of every side. Ok the sunshine is nice etc.... but I have had vertigo since I started.

So yesterday my boss takes us on a tour. We go the 19th floor. We ride the elevators to the 18th (cause the big cheese has the 19th floor and we didn't want to do the walk of shame past his office) and took the stairs. Did I mention all of the stairwells are floor to ceiling windows and the stairs are mesh so you can see thru them? Yeah I love those too, especially at floor 19. So at the top of the stairs, my boss opens the door and we're out on the roof! ON THE ROOF....... outside... 19 stories........ just a small guard rail.......... I can't believe I went out there! I stayed by the wall..nowhere near the edge.. but I was out there.... (picture What About Bob.. I'm sailing, I'm sailing). I did it!!! They wanted me to walk to the edge, but I couldn't do it. They were laughing at me...... but that's ok. I DID IT! I was shaking and had vertigo for a while after at my cube!

To the left of the picture, is the roof I was actually on! It kind of gives you perspective (zoom in on the picture, then you can see the UP symbol and roof better). There were 2 more stories we could have went up on and I said no thanks! The wall jutting out now has my butt imprint on it.....LOL

I have to admit, when we got married in Vegas, I did go out on the roof of the Rio, at 52 stories. We had our wedding dinner there, but INSIDE! They had a high guard rail and I had my hubby to hang onto so it wasn't bad.

Now if I can just get on that plane to Disney.... hehehe. Try to keep me off of it!

Another busy week hits Sunday

Why do the weekdays drag and the weekends fly by? No fair. I am still voting for a 2 day work week and 5 day weekend.. who's with me?

My eyes are doing well. The left one is still slow to heal but feels really good this morning. I may be on the track to perfect far vision. Now for some reading glasses! LOL

Alex's Make A Wish party is May 4th. It's coming up so quickly! We're having a pizza party at school with his class and Mickey Mouse is suppose to show up! Alex will flip out! We're going to have so much fun! I still need to find some decent walking shoes! yikes!

Spring may have sprung this weekend. Fingers crossed. The snow last week was friggin ridiculous! It's time to plant flowers and hear the birds sing. Ok the birds have been singing, but I'm pretty sure they were singing something about the friggin weather too! LOL

Have a good week. Off to do laundry.....

HOPPY EASTER

A big corny, but hey it works!

I love Easter. I love the pastels and little bunnies and baby lambs, easter baskets and Snickers mini bars (appropriately colored wrappers), new dresses and shoes (was never into the hat thing), tulips and daffodils and flying kites!

I do however despise Cadbury eggs. Whoever thought that one up needed some professional help. I also cannot tolerate coloring eggs. I don't why, but I have never enjoyed it.

No kite flying this year. I think with windchill it's about 10 degrees out. So screw the kite thing til it gets warmer. The tulips and daffodils are dead, thanks to the El Nina or whatever it is.

In spite of the cold, the Easter Bunny was very nice to Alex. He got a giant bucket of bubbles (the kids LOVES bubbles), some magnetix doo hickey, a Care Bear complete with bunny ears, a stuffed elephant (the kid also LOVES stuffed elephants) some other small egg toys and candy. I'm sure Grandma and Great Grandma are bringing more goodies, with more candy.

Funny Easter story. Alex's older brother Matt was three at one Easter. His grandparents always had a huge egg hunt. Tons of candy. Matt loved candy (who doesn't right?). He proceeded to gorge on chocolate eggs. When brunch rolled around, Grandpa told him he better eat. Nope, no siree, just some bacon please. Grandpa told him he'd get sick if he didn't eat. But for the wise 3 yr old, it was just "pass the eggs, the chocolate kind that is, please." Soooo at 3:00 in the afternoon, guess who was on the side of the road, puking his chocolate-y, bacon guts out? After he was done, he looked at us, all pitiful and green, and said (from the side of the road near the ditch) "Grandpa George sure is a lucky duck" - his 3 yr old way of saying grandpa sure nailed this one!! LOL

MORAL OF THE STORY: The following Easter we decided eating brunch might be a good idea, and his wonderful parents decided they really should monitor their kid better! THE END.

Hippity Hoppity, Happy Easter Day!